Diseases Fabry Support & Information Group / Cure Sanfilippo Inc. / Chronic Illness Inc. / Macular Degeneration Support Inc. / Diagnosis Inc. / Action Network Parry-Romberg Syndrome Resource Inc. / Jain Foundation Inc. / Jacob’s Cure Inc. / MPS Society National MS Society National Niemann-Pick Disease Foundation Inc. / Children’s Cardiomyopathy Foundation Inc. / Scleroderma Research Foundation Sickle Cell Disease Association of America Inc. / Hope Fund Hayden’s Batten Disease Foundation Inc. / Children’s Medical Research Foundation Inc. / /
Continent
America / /
Facility
Cures Celiac Disease Center / Children’s Hospital / Medical Genetics American Institute / Lymphatic Malformation Institute / Rayburn House Office Building / /
IndustryTerm
drug development tools / treatment for their diseases / /
Aging Research Alliance / Colitis Foundation / United States House of Representatives / Greater Chicago Coalition Duchenne Coalition / Scleroderma Research Foundation Sickle Cell Disease Association of America / Health Research Solving Kids’ Cancer Student Society / Lymphangiomatosis & Gorham’s Disease Alliance / Manton Center for Orphan Disease Research / Abigail Alliance for Better Access / Columbia University Celiac Sprue Association Charcot-Marie-Tooth Association / Gorham’s Disease Alliance / Chinese American Association / FDA / Children’s Cardiomyopathy Foundation / Tumor Association American Childhood Cancer Organization American College of Medical Genetics American Institute / Medical and Biological Engineering American Society of Clinical Psychopharmacology Batten Disease Support / Association New Jersey Association / Lymphatic Malformation Institute / American CSA Foundation Alliance / Miss Hannah Foundation Lung Cancer Alliance Lupus Foundation of America Lymphangiomatosis & Gorham / Cures Celiac Disease Center / Children’s Medical Research Foundation / National Niemann-Pick Disease Foundation / Reflex Sympathetic Dystrophy Syndrome Association / Society for Women / Digestive Disease National Coalition Erik Metzler Foundation EveryLife Foundation / Midwest Asian Health Association / /
March 23rd, 2012 The Honorable Cliff Stearns United States House of Representatives 2306 Rayburn House Office Building Washington, DC 20515