Back to Results
First PageMeta Content
Biology / Epidermolysis bullosa / Anchoring fibrils / Recessive dystrophic epidermolysis bullosa / Collagen / type VII / alpha 1 / Stem cell treatments / Hematopoietic stem cell transplantation / DebRA / Graft-versus-host disease / Medicine / Genodermatoses / Health


WRITTEN QUESTION RESPONSE OF ALEXANDER J. SILVER “Providing a Parent Perspective of Having a Child with Recessive Dystrophic Epidermolysis Bullosa and How to Facilitate Treatments and a Cure”
Add to Reading List

Document Date: 2014-04-29 13:42:14

Open Document

File Size: 1,30 MB

Share Result on Facebook

City

Princeton / Portland / Minneapolis / New York / Asahikawa / London / /

Company

CNN / Siemens / The New England Journal / /

Country

Netherlands / Japan / United States / /

Currency

USD / /

/

Event

FDA Phase / Person Communication and Meetings / /

Facility

Shriners Hospital / King’s College / Asahikawa Medical College / Stem Cell Institute / Laboratory Medicine / St. John’s Institute of Dermatology / University of Minnesota / Thomas Jefferson University / Guy’s Campus / /

IndustryTerm

care of leukemia / rare disease treatment / study protocol / oil / treatment of Crohn’s disease / /

MedicalCondition

severe mucosal disease / rare diseases / dystrophic epidermolysis bullosa / local and systemic infections / documented blister / Rheumatoid Arthritis / Recessive Dystrophic Epidermolysis Bullosa John E. Wagner / skin cancer / flexion contractures / injury / Recessive Dystrophic Epidermolysis Bullosa / disorder / burns / Psoriasis / IVS92+5G→A Esophageal stricture / orphan disease / malnutrition / leukemia / cardiomyopathy / cancer / rhagic cardiomyopathy / scars / severe mucocutaneous disease / pressure Renal insufficiency / deficiency anemia / vomiting / Mitten deformity / diseases / specific disease / infection / often fatal mucocutaneous blistering disease / skin diseases / hemorrhagic cystitis / flexion Mitten deformity / skin disorder / deformities / PEDIATRIC DISEASES / severe mitten deformities / candida sepsis / lymphoma / graft-versus-host disease / severe recessive dystrophic epidermolysis bullosa / constant inflammation / Epidermolysis Bullosa / infections / orphan diseases / rare pediatric diseases / blisters / burn / disease / lifelong physical deformity / rare disease / trauma-induced blisters / Crohn’s disease / mucositis / joint contractures / knee blisters / pain / blister / Renal insufficiency / each disease / extensive cutaneous disease / rare tropical disease / active anemia pseudomonas cellulitis F / anemia / /

MedicalTreatment

nutritional support / surgery / bone marrow transplants / stem cell therapies / chemotherapy / bone marrow transplant / immunosuppressive therapy / hemodialysis / /

Organization

Shriners Hospital for Children / SENATE COMMITTEE ON HEALTH / Department of Dermatology / Dystrophic Epidermolysis Bullosa Research Association of America / JGS Foundation / Division of Pediatric Hematology/ Oncology and Blood / DebRA / King’s College London / Thomas Jefferson University / Jackson Gabriel Silver Foundation / Asahikawa Medical College / St. John’s Institute of Dermatology / Microimaging Center / National Institute of Health / Epidermolysis Bullosa Medical Research Foundation / Department of Pediatrics / Congress / Stem Cell Institute / FDIC / University of Minnesota / Massachusetts Medical Society / /

Person

A BS / Akemi Ishida-Yamamoto / Theresa Liao / Maria Hordinsky / Jackson / Jouni Uitto / John A. McGrath / Douglas R. Keene / John E. Wagner / Megan J. Riddle / Sister / Nate / Jakub Tolar / Mark J. Osborn / Dermatology / John Wagner / Troy Lund / Bruce R. Blazar / Julian / Jake / ALEXANDER J. SILVER / Michelle Dolan / /

Position

director of pediatric blood and marrow transplantation and clinical director / study co-author / trustee / professor of pediatrics / associate professor / co-author / fundraiser / professor and chairman / official fundraiser / pediatrician / /

Product

Rituxan / cyclosporine / Remicade / cyclophosphamide / C7 / /

ProgrammingLanguage

R / /

ProvinceOrState

Minnesota / ARDS / New Jersey / Massachusetts / /

PublishedMedium

New England Journal of Medicine / The New England Journal of Medicine / /

Technology

stem cells / digital photography / chemotherapy / allogeneic bone marrow transplant.15 The study protocol / antibodies / transplantation / pharmacokinetics / /

SocialTag