Dublin / Barcelona / Shenzhen / Berlin / Finland Lysogene / Sanita / /
Company
Isis Pharmaceuticals / Genzyme Genzyme / Patient Advocacy Group / Sanofi company / United Kingdom Isis Pharmaceuticals / Inserm / /
Continent
Europe / South America / /
Country
Germany / Italy / France / United States / Canada / China / /
Event
Labor Issues / /
Facility
University of McGill / The Netherlands Carlos III Health Institute / USA National Institute of Arthritis / USA National Institute of Child Health / USA National Eye Institute / USA National Human Genome Research Institute / Japanese National Institute of Public Health / Cancer Institute / The Netherlands National Institute / USA National Institute of Neurological Disorders / France Korea National Institute of Health / /
IndustryTerm
important tools / rare diseases community networks / search engine / /
OperatingSystem
Isis / /
Organization
9th Executive Committee / Scientific Secretariat / China Academy of Finland / International Rare Diseases Research Consortium / USA office of Rare Diseases / National Institute of Health / Sci Com / Scientific Committees / USA National Center for Advancing Translational Sciences / USA National Human Genome Research Institute / USA PTC / Spain Food and Drug Administration / France FFRD / Korea National Institute of Health / Genzyme‘s mission / USA Genetic Alliance / USA National Institute of Arthritis and Muskoloskeletal / Exec Com / Executive Committee / IRDiRC Secretariat / USA National Institute of Neurological Disorders and Stroke / French Foundation / Organisation for Health Research and Development / EU European Commission / USA National Institute of Child Health and Human Development / French Association against Myopathies / Therapies Sci Com / The Netherlands National Institute for Health Research / International Congress / Japanese National Institute of Public Health / Italy Telethon Foundation / European Commission / Scientific Committee / USA National Eye Institute / Federal Ministry of Education / University of McGill / European Union / Health Institute / Cancer Institute / Department of Health / French National Research Agency / /
Person
Barbara Cagniard Apologies / Lucia Monaco Sonja van Weely / Daria Julkowska Stefan Schreck Irene / Françoise Rouault Natalia Martin Roseline / Paul Lasko Pierre Meulien Daria / Hugh Dawkins Paul Lasko Pierre / Ning Li Qing Wang Heikki / Brett Monia Edward Trimble Santa / Oleg Kvlividize Emmanuel Chantelot Domenica / Stefan Schreck Irene Nordsted / Irene Nordsted Béatrice de Montleau / Hyun-Young Park Luc Dochez Willem / Ségolène Aymé / Natalia Martin Roseline Favresse Ralph Schuster Oleg / Ralph Schuster Oleg Kvlividize Emmanuel / Edward Trimble Santa Tumminia Christopher / Karen Aiach Hyun-Young / Marie-Christine Ouillade / Shuling Guo / Ralph Schuster / Emmanuel Chantelot Domenica Taruscio Lucia / Pierre Meulien Daria Julkowska Stefan / Sonja van Weely Pedro Cortegoso Fernandez / Qing Wang Heikki Vilen Karen Aiach / Antonio Andreu Periz Debra Lewis / Sharon Terry Carlo Incerti Jeff Schloss Pamela / Stephen Groft Diane Goetz David / Melissa Parisi Danilo Tagle Robert / /
Position
Chair The Chair / formal association Chair / author / EXECUTIVE / Chair / Representative / /
Minutes of the 9th Executive Committee meeting 7-8 May 2014 9th Exec Com meeting – Berlin, Germany - Report – Public Version, 15 July 2014