GENEVA / San Francisco / Rochester / Seattle / Garrison / Boston / Baltimore / Camden / Madison / Washington / DC / Lutherville / Pittsburgh / Vancouver / Bethesda / Washington / /
Company
Human Biobank / IRRs NINDS Repository UK Biobank / Rhode Island BioBank / Biospecimen Resources / Myeloma Bank / Connecticut Behavioral Gene Bank / Heart Study NUgene Project Rhode Island BioBank / UK Biobank / IFs / Collection Site A Biobank / Biobank / 23andMe / /
Country
United States / Canada / / /
Event
Business Partnership / /
Facility
Hopkins University / National Institute of Neurological Disorders / Ralph Hall / American College of Medical Genetics / Hastings Center / National Cancer Institute / Hospital Boston / Women’s Hospital / University of Connecticut Behavioral Gene Bank / University of Minnesota / Marshfield Clinic / /
IndustryTerm
search process / work products / pharmaceutical / healthcare / research site / honest broker / literature search / advance online publication / /
MedicalCondition
particular disease / colon cancer / breast cancer / /
Organization
National Cancer Institute / Human Genome Organisation / National Institute of Health / 5Coriell Institute / Food and Drug Administration / 11The Hastings Center / 4Stanford University / 7Harvard Medical School / Office for Protection / Office for Human Research Protections / Informed Cohort Oversight Board / University of Connecticut / Yale University’s IRBs / International Society for Biological / 2Johns Hopkins University / University of Minnesota / Minneapolis / Council for International Organizations of Medical Sciences / Environmental Repositories / Medicare / National Institute of Neurological Disorders and Stroke / 6Brigham and Women’s Hospital / 9McGill University / Montreal / 17Genetic Alliance / Data Access Committee / 16National Coalition for Health Professional Education / International Society for Biological and Environmental Repositories / 3Duke University / Durham / 19Children’s Hospital Boston / Department of Health and Human Services / 15Georgetown University / Washington / American College of Medical Genetics and Genomics / Stanford / /
Person
Lisa S. Parker / Sharon F. Terry / William McGeveran / Frances Lawrenz / Bonnie LeRoy / Robert C. Green / Karen J. Maschke / Barbara A. Koenig / Henry S. Richardson / Benjamin S. Wilfond / Brittney N. Crock / Wendy A. Wolf / Moira Keane / Gloria M. Petersen / Pilar Ossorio / Mildred K. Cho / Brian Van Ness / Joan A. Scott / Michael F. Christman / Jeffrey P. Kahn / Susan M. Wolf / Judy Illes / Laura M. Beskow / Isaac S. Kohane / /
Position
investigator / secondary investigator / May conduct research Secondary Researcher / principal investigator / contributing investigator / manager / broker / director of identified biobanks and requested relevant documents / Secondary Researcher / physician / researcher / consultant / trustee / author / multidisciplinary Investigator / model of biobank research / /
Product
MTAs / /
ProgrammingLanguage
DC / /
ProvinceOrState
New Jersey / Wisconsin / Minnesota / Quebec / Maryland / British Columbia / New York / Washington / Pennsylvania / North Carolina / California / Massachusetts / /
©American College of Medical Genetics and Genomics special article Managing incidental findings and research results in genomic research involving biobanks and archived data sets