Halifax / Buffalo / Paris / Laval / Calgary / London / /
Company
BioMarin Pharmaceutical Inc. / Merck Frosst Canada Ltd. / YM Biosciences Inc. / Mfg / Debiovison Inc / Pfizer Inc / Inotech / Genzyme / National Specialist Commissioning Advisory Group / Amgen Canada Orfagen Bayer PTC Therapeutics Inc / Actelion Pharmaceuticals Neurochem Inc / Hoffmann-La Roche Limited / Corporate Supporter Mark Krueger & Associates Inc. / SHIRE Human Genetic Therapies INO Therapeutics Sigma-Tau Pharmaceuticals Inc. / MASTERCARD / BIOTECanada Rare Disease Therapeutics Gilead Sciences Canada Inc / Novartis Pharmaceuticals Canada / /
Continent
Europe / /
Country
Netherlands / Japan / Canada / Jordan / United States / /
Currency
USD / EUR / / /
Event
Person Communication and Meetings / FDA Phase / Business Partnership / /
Facility
Memorial Hospital / Saint-Louis University / Princess Margaret Hospital / She Alberta Children’s Hospital / Roswell Park Cancer Institute / Institute of Population Health / National Cancer Institute of Canada’s Terry Fox New Initiatives / / /
IndustryTerm
therapy for PKU / a rare disorder / Cancer Care / therapies for rare disorders / treatment protocol / drug makers / health technology assessment / Treatment of rare disorders / therapy for a rare disorder / media exposure / treatment for Pompe disease / local support / treatment of Fabry’s Diseases / orphan products / PTC Therapeutics Inc BIOTECanada Rare Disease Therapeutics / adhoc / healthcare / care for patients with lysosomal storage disorders / healthcare services / health care systems / treatment for patients with rare disorders / /
Hospital for Sick Children / CORD Corporate Council / Life Fund / Rare Diseases Task Force / Princess Margaret Hospital in Toronto / US Federal Reserve / Canadian Deafblind and Rubella Association / Department of Health / Ministry of Education / Registered Charity / Princess Margaret Hospital Patient Education Committee / National Cancer Institute of Canada / Rare Disease / House of Commons / Institute for Opti / CHARGE Syndrome Foundation / Roswell Park Cancer Institute in Buffalo / Alberta Children’s Hospital / Canadian Association of Pompe Disease / Peterborough District Health Unit Task Force on Complementary and Alternative Treatments / Dutch Steering Committee on Orphan Drugs / House Standing Committee on Health / International Waldenstrom’s Foundation / Cancer Care Ontario Regional Council for South-East Ontario / U.S. Securities and Exchange Commission / Ontario Chapter / European Commission / European Union / Canadian Association of Pompe / Memorial Hospital in Chicago / European Organization for Rare Disorders Conference / European Organization for Rare Disorders / House Standing Committee on Health Report / Canadian Fabry Association / Canadian MPS Society / Cancer Care Ontario’s Research Advisory Committee / Executive Committee / Canadian Organization for Rare Disorders / LINK Canadian Organization for Rare Disorders Winter / Margaret Hospital in Toronto / Institute of Population Health / European Medicines Agency / Expert Drug Advisory Committee / U.S. Food and Drug Administration / Ontario Drug Strategy Secretariat / International Morquio Organization / Saint-Louis University / Professional Advisory and Research committee / /
Person
Amir Attaran / Stuart MacLeod / Edmund Jessop / Joseph Witalis North York / Helen Stevenson / Don Bell / Ralph Kern / Joseph Witalis / Shunji Tomatsu / Michele Lipucci di Paola / Elisabeth Fowler Ottawa / Rare Disorders / Kirsten Harkins North Vancouver / Gail Ouellette / Marlene Haffner / Robin Casey / Betty McPhee / Sonja van Weely / John Adams / Ann Gloyn / Michael Drummond / Joseph Witalis Ann Gloyn / Judy Byrne / Annette Feigenbaum / Margery Konan / Ségolène Aymé / Durhane Wong-Rieger / Tony Clement / Adrian (Ed) Koning / Andreas Laupacis / Gail Ouellette Stoke / Kathy Kovacs-Burns Edmonton / Dominique Etienne North York / Helen Tsenekos / / /
Position
federal Minister / General / Professor / geneticist and genetic counsellor / Representative / Board member / Officer of the Ontario Drug Program / Minister of Health / ministry representative / PRESIDENT / Assistant Deputy Minister and Executive / head / Leader Corporate Friend Alexion Pharmaceuticals Amicus Therapeutics Inc. Celgene ApoPharma Inc Genzyme Canada / Education Specialist Teacher / Executive / teacher / or therapist / Assistant / Vice-President / MP / President / international leader / Chair / Newsletter As president / member of Board of Directors / /
Product
prednisone / cyclophosphamide / Kuvan / Myozyme / Fabrazyme / Rituxan / Orphan Drug / proval / Ontario / /
ProvinceOrState
Quebec / British Columbia / Nova Scotia / Ontario / Missouri / /
The LINK Canadian Organization for