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Pharmaceuticals policy / Lipid storage disorders / Neurodegenerative disorders / Durhane Wong-Rieger / Rare Disease Day / Orphan drug / Niemann–Pick disease / European Organization for Rare Diseases / Health / Rare diseases / Canadian Organization for Rare Disorders


Special Thanks HERO LEVEL CANADIAN ORGANIZATION FOR RARE DISORDERS Rare Disease Day
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Document Date: 2012-09-26 13:04:28

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File Size: 1,52 MB

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City

Boston / /

Company

MasterCard / Pharmaceutical Companies (Rx&D) Pfizer WHAT CAN / Amgen / CIHR Rare Disease Emerging Teams Research Fund / Medunik Canada / /

Country

Canada / /

Currency

USD / /

Event

Business Partnership / /

Facility

Celgene BioMarin Children's Hospital of Eastern Ontario / Swiss Chocolate Fountain Station / Wine Bar / /

IndustryTerm

reimbursement services / healthcare system / biotechnology / healthcare investment / therapy for severe / life-threatening disorders / community infusion services / /

MedicalCondition

Rare Diseases / Joubert Syndrome / rare disease / Niemann-Pick disease / Fabry Disease / rare disorders / diseases / rare disorder / aplastic anemia / serious illness / disorders / /

MedicalTreatment

innovative therapies / /

MusicGroup

Swiss / /

Organization

Canadian Organization for Rare Disorders Invited / Abbott Canada Celgene BioMarin Children's Hospital / Canadian Organization for Rare Disorders / Scientific Director Institute of Genetics / /

Person

Paul Lasko / Kelly Gorman Maureen / O. Joan Jagodnik Caroline Laughlin Jim / Durhane Wong-Rieger / Bill Dempster / Judy Gallagher / Joseph Witalis Helen Sinclair / Sébastien Larose / John Adams / Elisabeth Fowler Steven / Institutes Durhane Wong-Rieger / Bill Laughlin / Caroline Laughlin Jim Mundy Joseph Witalis Helen / /

/

Position

President / Speaker / De nombreux Canadiens doivent composer / Executive / Minister of Health / advocate for health policy / / professional photographer / Smith Secretary / /

ProvinceOrState

Quebec / /

Region

Arctic Circle / Eastern Ontario / /

Technology

biotechnology / /

URL

www.bayshore.ca / www.medunikcanada.com / www.amgen.ca / /

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