Expected outcomes 1. An integrated and harmonized set of instruments to assess and monitor socio-economic burden and HRQOL of patients affected by RD and their caregivers. These instruments will help measure the impact

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Date: 2011-05-31 10:16:13 Healthcare Quality of life European Organization for Rare Diseases Rare disease Chronic Caregiver Health Medicine Medical terms		Expected outcomes 1. An integrated and harmonized set of instruments to assess and monitor socio-economic burden and HRQOL of patients affected by RD and their caregivers. These instruments will help measure the impact Document is deleted from original location. Use the Download Button below to download from the Web Archive. Download Document from Web Archive File Size: 288,56 KB

Document is deleted from original location. Use the Download Button below to download from the Web Archive.