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Rare Disease UK response to the Department of Health and Social Services (Wales) on the consultation on the UK plan for rare diseases About us: Rare Disease UK (RDUK) is the national multi-stakeholder alliance for people
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Document Date: 2012-05-29 09:25:58


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Company

Optimising Resources / Rare Disease UK / /

Continent

Europe / /

Country

Northern Ireland / United Kingdom / Scotland / Wales / /

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Event

Reorganization / /

Facility

Royal College of General Practitioners / /

IndustryTerm

well organised services / screening services / expert clinical systems / clinical systems / clinical management / pharmaceutical / secondary healthcare professionals / social services / access services / e-learning / definitive solution / planned services / healthcare professional / healthcare providers / /

MedicalCondition

each rare disease / muscular dystrophy / chronic rare diseases / rare diseases / how rare disease / Wales rare disease / chronic rare disease / final rare disease / rare cardiac diseases / different rare diseases / diagnostic delay Rare diseases / acyl-CoA dehydrogenase deficiency / disease / individually rare diseases / multi-system rare disease / rare disease / how rare diseases / UK rare disease / rare disorders / diseases / non-genetic rare diseases / /

Organization

Genetic Alliance UK / National Genetics Education and Development Centre / Welsh Government / Royal College of General Practitioners / Welsh Health Specialised Services Committee / UK National Screening Committee / NHS Commissioning Board / national multi-stakeholder alliance / European Commission / Department of Health / NHS / /

Position

Minister / named care coordinator / /

Technology

GPS / e-learning / /

URL

http /

SocialTag