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Company Optimising Resources / Rare Disease UK / / Continent Europe / / Country Northern Ireland / United Kingdom / Scotland / Wales / / / Event Reorganization / / Facility Royal College of General Practitioners / / IndustryTerm well organised services / screening services / expert clinical systems / clinical systems / clinical management / pharmaceutical / secondary healthcare professionals / social services / access services / e-learning / definitive solution / planned services / healthcare professional / healthcare providers / / MedicalCondition each rare disease / muscular dystrophy / chronic rare diseases / rare diseases / how rare disease / Wales rare disease / chronic rare disease / final rare disease / rare cardiac diseases / different rare diseases / diagnostic delay Rare diseases / acyl-CoA dehydrogenase deficiency / disease / individually rare diseases / multi-system rare disease / rare disease / how rare diseases / UK rare disease / rare disorders / diseases / non-genetic rare diseases / / Organization Genetic Alliance UK / National Genetics Education and Development Centre / Welsh Government / Royal College of General Practitioners / Welsh Health Specialised Services Committee / UK National Screening Committee / NHS Commissioning Board / national multi-stakeholder alliance / European Commission / Department of Health / NHS / / Position Minister / named care coordinator / / Technology GPS / e-learning / / URL http / SocialTag