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Epidermolysis bullosa / NHS England / National Health Service / Health / DebRA


A12/S(HSS)/aNHS STANDARD CONTRACT FOR EPIDERMOLYSIS BULLOSA SERVICE (ALL AGES) PARTICULARS, SCHEDULE 2 – THE SERVICES, A - SERVICE SPECIFICATION Service Specification No.
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Document Date: 2013-08-13 12:10:33


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Company

EB / NHS England NHS England / /

Country

United Kingdom / /

Facility

Hospital NHS Foundation Trust Heart / Hospital NHS Foundation Trust / EB laboratory / Great Ormond Street Hospital / hospital EB Co-ordinator / /

IndustryTerm

heterogeneous / telephone consultation / skin care management / social welfare services / Genetic services / local genetic services / /

MedicalCondition

malnutrition / squamous cell carcinoma / disease / acute illness / cutaneous squamous cell carcinoma / Kindler syndrome / metastatic skin cancer / rare disease / skin cancer / disseminated skin cancer / inherited diseases / patient’s disease / rare inherited disorders / pain / chronic blistering / desmoplakin deficiency / chronic skin loss / Epidermolysis bullosa / skin cancers / extremely rare disease / contractures / syndrome / Epidermolytic ichthyosis / /

MedicalTreatment

amputation / Surgery / counselling / circumcision / /

Organization

Other MDT / NHS Commissioning Board / Great Ormond Street Hospital / EPIDERMOLYSIS BULLOSA SERVICE / NHS / /

Position

Consultant dermatologist EB CNS Dietician Physiotherapist Occupational therapist Ophthalmologist Dentist / speech and language therapist / ENT surgeon / podiatrist / psychologist / Dietician Physiotherapist Occupational therapist Ophthalmologist Dentist Psychologist Interventional radiologist Palliative care/pain clinician Plastic/hand surgeon / Clinical Nurse / therapist Ophthalmologist Dentist Psychologist/psychotherapist Interventional radiologist Palliative care/pain clinician Plastic/hand surgeon Podiatrist Service / Therapist / dentist / lead consultant / surgeon / cardiologist / clinical nurse specialist / psychologist / social worker / cardiologist / endocrinologist and orthotics / speech and language therapist / nurse / dietician / Occupational / dietician / podiatrist / A - SERVICE SPECIFICATION Service Specification No. Service Commissioner / social worker / Representative / therapist Ophthalmologist Dentist Psychologist Interventional radiologist Palliative care/pain clinician Plastic/hand surgeon Podiatrist Service / ENT surgeon / cardiologist / EB CNS Dietician Physiotherapist Occupational therapist Ophthalmologist Dentist Psychologist/psychotherapist Interventional radiologist Palliative care/pain clinician Plastic/hand surgeon / consultant / Consultant dermatologist Consultant / General / children's nurse / dental hygienist / Co-coordinator / local commissioner / podiatrist / clinical nurse specialist Dietician Physiotherapist Occupational therapist Ophthalmologist Dentist Psychologist / /

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