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Medicine / Drug discovery / Epidemiology / Nursing research / Pharmaceutical industry / Orphan drug / Clinical trial / Rare disease / Food and Drug Administration / Health / Pharmaceutical sciences / Pharmacology


“A valuable opportunity to meet others in the rare disease space, and learn about, and from, the various aspects and challenges each deals with.” – Richard Klein, Director, Patient Liaison Program, Office of Healt
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Document Date: 2015-05-05 12:13:10

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File Size: 2,37 MB

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City

Philadelphia / /

Company

AMICUS THERAPEUTICS INC. / FDA 2nd Rare Disease Collaboration Summit Cultivate Partnerships / Public Policy / SHIRE PHARMACEUTICALS / Private Partnerships / RHO INC. / Media Partners / PFIZER / Patient Advocacy Groups / MasterCard / American Express / PA Cultivate Partnerships / ExL Events Inc. / ExL Pharma / THE MASTOCYTOSIS SOCIETY INC. / Patient Advocacy / Patient Resources / PARENT PROJECT MUSCULAR DYSTROPHY / /

Continent

America / /

Country

United States / /

Currency

USD / /

Event

FDA Phase / /

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IndustryTerm

biotechnology / advocacy groups / insurance / Leverage Rare Disease Therapy / sustainable healthcare system / healthcare / pharmaceutical / therapeutics for rare diseases / advocacy / chemical entities / approach protocols / Personalized Rare Disease Therapeutics / pharmaceutical products / /

MedicalCondition

Rare Diseases / PARENT PROJECT MUSCULAR DYSTROPHY / orphan disease / disease / rare disease / stroke / pulmonary hypertension / Rare/Genetic Diseases / /

Organization

National Institute of Health / INC / By Organization / PULMONARY HYPERTENSION ASSOCIATION / EMA / ’S HOPE FUND / office of Rare Diseases Research / NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES / FDA / Division of Clinical Innovation / FRIEDREICH’S ATAXIA RESEARCH ALLIANCE / MASTOCYTOSIS SOCIETY / office of Health and Constituent Affairs / /

Person

Ron Bartek / Kyra Rosow / Neil / Beth White / Diane Berry / Closing Remarks Ron Bartek / Catie Olson / Day One Ron Bartek / Philip J. Brooks / Richard Klein / Rino Aldrighetti / Brett Kopelan / ARNO THERAPEUTICS / Chairs Ron Bartek / Jayne Gershkowitz / Carrie Burke / Lori Sames / Yaffa Rubenstein / Kari Rosbeck / Nora Yang / Pat Furlong / Stefan Proniuk / Ted Buckley / Opening Remarks Ron Bartek / Nina DiPrimio / /

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Position

Director / PREMIER RESEARCH Discuss Approaches / Executive Director / President / Pediatric Co-Chair / Vice President / Global Health Policy and Government Affairs / Vice President / speaker / Assistant Vice President / Rare Disease / Director / Alliance Development / Director / HANNAH / Weiss Conference Production Director / Senior Director / Business Development / PREMIER RESEARCH / Director / Patient Liaison Program / Chief Development Officer / CEO / Director / Organism Engineer / Head of US Government Relations and Public Affairs / Director / Coordination / Chairman of the Board of Directors / President / FRIEDREICH’S / CEO / Data Repository / forward / /

Product

Streamline Drug / Orphan Drug / THERAPEUTICS / Rare Diseases / Building solutions / /

ProvinceOrState

Pennsylvania / /

Region

Latin America / /

Technology

genomics / approach protocols / Generate protocols / biotechnology / Drug Delivery / Drug Development / /

URL

www.exlevents.com/rare / /

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