Acord Sara Adams Roger Adsett Alabama EDSers Inc. / Intrexon Corporation / Greater Baltimore Medical Center / Bain / Facebook / Rare Connective Tissue Disorders F IBROCELL Science Inc. / Figard Eleanor Angstadt Scott Applebaum Arpin Charitable Fund Inc. / AT&T / EDNF / GBMC / Fibrocell / Fibrocell Science / /
Country
United States / /
Currency
USD / / /
Event
Business Partnership / Product Issues / /
Facility
Learning Conference Hilton Americas Hotel / Growing Pipeline of Protein Replacement Therapies / Harvey Institute / Hilton Americas Hotel / National Cancer Institute / Thomas Jefferson University / Greater Baltimore Medical Center / /
Holiday
New Year's Day / /
IndustryTerm
therapeutics for the treatment of skin disorders / autologous fibroblast product / protective services / Therapies for Rare Connective Tissue Disorders / treatment for Ehlers-Danlos syndrome / financial services / Online Community / Online Support Communities / technology access fee / Online Learning / therapeutics for the treatment of multiple skin disorders / online communities / /
Harvey Institute for Human Genetics / EDNF Center for Clinical Care / FDA / Department of Dermatology and Cutaneous Biology / National Cancer Institute / Thomas Jefferson University in Philadelphia / Ehlers-Danlos National Foundation / HLERS-DANLOS National Foundation / Department of Dermatology and Cutaneous Biology at Thomas Jefferson University in Philadelphia / /
Person
Mary Boyle Sharon Bradley Julie / John B. Zonarich / Mike Yasick / Clair Francomano / Michael Yasick Susan Borgsmiller Celiann / Rochelle Bain David Baker Kathleen / Wendi A. Amos / Susan Hawkins / Shane Contalonis Darcy / Susan Borgsmiller Celiann Boston Jennifer / Stephanie Saffold Berthelsen Patricia Berlinghieri / Jouni Uitto / Jessica Figard Eleanor Angstadt Scott / Awad B Anne / Marie Brooks Sherrie Brower Dianne Brown Doris / Amy Barrington Kate Beal Tina / Heidi Collins / Lori Ault Susan Awad / Kate Beal Tina Beaumont Belvoir / David Pernock / Blake Jeffrey Michael Blilie Rebecca Boardman Kendra / Kristina Bacon Angela Bagley / Michelle Barber Larry Barnette / Lori Altman / Dulcie Bull Christiane Michele / Karen Bachman Kristina Bacon Angela / John Coughlin / Jacqueline Abrams Bernice Aceto / Caitlin Yankowskas / Darcy Acord Sara Adams Roger / Ann Marie Brooks Sherrie / Tricia Buie Dulcie Bull Christiane / Kathleen C. Black Patrick Black Lynne / Jennifer L. Bouley Janet Bowmer Donna / Janet Bowmer Donna Boyle Mary / Anne Burton / Samuel Broder / Mark C. Martino / Patricia Berlinghieri Sylvia Jean Besse / Elizabeth Berger Stephanie Saffold Berthelsen / Dianne Brown Doris Brown Marjorie / Nicole Aucoin Lori Ault Susan / Shawn Brennan Debbie Brinkley Sonia Brinton Ann / Caydee Denney / Sonia Brinton Ann Marie Brooks / David Baker Kathleen Baker Lynne / Rebecca Boardman Kendra Bock Nancy / Katie Couric / Donna Boyle Mary Boyle Sharon / Michael Yasick Bethany / Kendra Bock Nancy Bogardus / Sylvia Jean Besse Ruth Besteman / Fred Stickle / Jr. / Lynne Blake Jeffrey Michael / Sharon Bradley Julie Branting Kara Breedlove / Michael Yasick Rochelle Bain David / Gail N Ashley / Joan Bills Bernadette Black Kathleen / Shane Robinson / /
Position
Executive Director / Chief Executive Officer / EDNF Executive Director / attorney / Editor / SKATER / leader / Chairman / Director / Chair / /
L O O S E CONNECTIONS Collaboration to Include TNXB Hypermobility-Type EDS..................................................................... 2 From the Executive Director Shane Robinson................................