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Ehlers–Danlos syndrome / Syndromes / Inspire / Infrastructure for Spatial Information in the European Community / Ehlers / Health / Collagen disease / Contortion


Inspire Case Study: Growing a rare disease community in size and activity The Challenge To achieve its mission the Ehlers-Danlos National Foundation (EDNF) needed to improve its peer-to-peer online discussion board, whic
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Document Date: 2014-08-22 15:33:39


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City

Princeton / Nassau / /

Company

EDNF / /

/

IndustryTerm

turnkey social media platform / online / secure online communities / online discussion board / online community / /

Organization

National Infertility Association / Ehlers-Danlos National Foundation / /

Person

Shane Robinson / /

/

Position

Executive Director / /

ProvinceOrState

New Jersey / /

Technology

discussion board / peer-to-peer / /

URL

www.ednf.org / www.inspire / /

SocialTag