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City Melbourne / Sydney / / Company The Fabry Support Group Australia / / Country Germany / United States / Australia / United Kingdom / / Currency USD / / Event Person Communication and Meetings / Product Issues / / IndustryTerm Treatment of Fabry Disease / potential solutions / treatment for their rare disease / therapies for their very rare life limiting disease / / MedicalCondition premature stroke / anhidrosis / strokes / rare diseases / angiokeratomas / very rare life limiting disease / disease / rare disease / nausea / stroke / vertigo / skin rash / head pain / peripheral neuropathy / pain / vomiting / kidney failure / Fabry Disease / heart failure / late disease / heart attack / diseases / hypohidrosis / very rare disease / dizziness / renal failure / intense excruciating burning pain / depression / / MedicalTreatment open heart surgery / bypass surgery / Enzyme Replacement Therapy / kidney dialysis / kidney transplant / innovative therapies / / Organization European Medicines Agency / Therapeutic Goods Administration / Australia Submission Introduction The Fabry Support Group Australia / Australian Government / Food & Drug Administration / Department of Health / / Person Dermatologist / Kim Beswell / Felicity McNeill / Gastroenterologist / / Position Cardiologist / Renal Specialist / Minister of Health / Renal Specialist / Cardiologist / Neurologist / / Product Fabry Doctor / sweating / / Technology dialysis / / SocialTag 
7 November 2014 Dear Committee Re: Life Saving Drugs Programme Review Fabry Support Group of Australia Submission