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COMMENTARY A Mechanism for Controlled Access to GWAS Data: Experience of the GAIN Data Access Committee Erin M. Ramos,1,* Corina Din-Lovinescu,1 Ebony B. Bookman,1 Lisa J. McNeil,2 Carl C. Baker,3 Georgy Godynskiy,4 Emil
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Company

GAIN / Nestle / Donnelly / Valeyev N.V. / GAIN Collaborative Research Group / Allen A.S. / Pearson / Kotov N.V. / /

Country

Trinidad / /

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Event

Person Communication and Meetings / Conference Call / Delayed Filing / Judicial Event / /

Facility

National Institute of Mental Health / Blood Institute / National Institute of Diabetes / Georgetown University / National Institute / National Institute of Arthritis / National Human Genome Research Institute / National Cancer Institute / National Library of Medicine / /

IndustryTerm

genetic-analysis software program / insurance / online system / study site / datasecurity protocols / information technology / download management / secure site / http /

MedicalCondition

complex disease / schizoaffective disorder / mental-health disorders / acute psychoses / psoriasis / paranoid personality disorders / ADHD / complex common diseases / schizophrenia / Metabolic Diseases / depressive disorder / diabetes / psychiatric disorders / Diseases / depression / Skin Diseases / major depressive disorder / common disease / medical disorders / schizophrenia GRU / attention-deficit hyperactivity disorder / Mental Disorders / I diabetes / nephropathy / cardiovascular disease / diabetic nephropathy / GAIN psoriasis / personality disorders / disease / skin and rheumatic diseases / attentiondeficit hyperactivity disorder / GAIN schizophrenia / Kidney Diseases / migraine / cardiovascular disease / autoimmune disease / related disorders / bipolar disorder / /

Organization

National Human Genome Research Institute / NIH DAC / Division of Genomic Medicine / Data Management Steering Committee / NIH PPDM / Data Access Committee / African Union / Pulmonary Branch / National Heart / Lung / and Blood Institute / GAIN Steering Committee / National Institute of Arthritis and Musculoskeletal / National Institute of Mental Health / National Cancer Institute / GAIN PI / NIH GWAS Senior Oversight Committee / National Institute of Health / NIH Participant Protection and Data Management Steering Committee / National Institute of Diabetes / American Society of Human Genetics / National Institute / 4National Center for Biotechnology Information / Electronic Research Administration / National Center for Biotechnology Information / GAIN DAC / Georgetown University / Washington / GAIN Data Access Committee / Steering Committee / NIH Advisory Committee / Advisory Committee / Genomewide Association / /

Person

Jarvik / Nat / Redman / Larson / Someone / Thomas Lehner / Laura Lyman / NIH GWAS / /

Position

G.P. / general research use / single requesting investigator / General / IT director / Missing IT director / senior researcher / Major / Director / http /

ProgrammingLanguage

DC / /

PublishedMedium

The American Journal of Human Genetics / R&R / the GAIN DAC review / the PR review / /

Technology

information technology / genotyping / Human Genome / genotype / genomics / Biotechnology / study protocols / http / SNP / datasecurity protocols / /

URL

http /

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