San Francisco / Houston / Atascadero / Meadows / Youngstown / Stockholm / New York City / Orlando / Madison / /
Company
APF / All About / Clinuvel / Beacon Converters Inc. / /
Continent
Europe / /
Country
Sweden / Turkey / United States / Lebanon / /
Currency
USD / /
Event
FDA Phase / Person Communication and Meetings / Person Travel / /
Facility
Medicine Building / Mount Sinai Medical Center / Camp Sundown / Children’s Hospital / University of WisconsinMadison / Mount Sinai Porphyria Clinic / Camp Discovery / Stockholm City Hall / /
IndustryTerm
food / local media / food shortage forced people / treatment of rare diseases / pharmaceutical status / local media coverage / Internet search / /
FDA / Manton Center for Orphan Disease Research / Swedish Society of Medicine Building / Environmental Protection Agency / Mount Sinai Medical Center in New York / AMERICAN PORPHYRIA FOUNDATION / University of WisconsinMadison / American Society of Hematology / APF Scientific Advisory Board / Manton Foundation / Children’s Hospital Boston / /
Person
Grace Warfield / Then Deb / Sophie Marshall / Tracy Nadeau / Derek Cripps / Dolores Brazas / Lori Brown / Susan Marshall / Desiree How / Helen Smuczynski / Amy Love / Patricia Wright / Christine L. Cowles / Sylvia Bottomley / Darlene Folkes / Steven Shedlofsky / Desiree Lyon / Lawrence Liu / Richard Cantalupi / Debra True / Joseph Gray / Suzette Cowles / Connie Helleson / George III / David Quintero / Neville Pimstone / Randolph Wellford / Micheline M. Mathews-Roth / Pamela J. Flynn / Ryan / Kenneth Astrin / Margaretha Morand / Peter Tishler / Lisa Kancsar / Judy Coley / Mira Geffner Porphyria / Ralph M. Gray / Ruth Wilson / Norma Brown / Karen Eubanks / Vickie Gelm / James Smuczynski / Joanne H. Kitch / Fred L. Gray / Richard Dugger / Lawrence Pritchard / Paula Hendrix / Yvette M. Strange / Alene Ironman / Brenda Wendland / Anne Wilson / Jennifer / Audrey Timper / Diane L. Levere / Dorothy Shell / Joe L. Yager / C.J. Watson / Randall Wendland / Kent Martin / Lara Quintero / Gary E. Eyster / Elaine Smuczynski / George Pacquet / Gene Bennett / Wesley J. Brazas / Robert P. Quigley / Richard D. Levere / James True / Debra Wendland / Sarah Pritchard / Robert Desnick / Alan R. Rushton / Matthew Brown / Arlene Yager / Monica Firchow / Robert Hendrix / Mary Frances Donnelly / Miranda Dennis / Troy / Keith Foldesi / Ken Timper / Michael J. Drew / Edward Marshall / Janet Brandon / / /
Position
care physician / physician / passionate advocate / founder / generous spokesperson and advocate / consultant and lab specialist / medical historian / board member / dentist / King / VP / scientist and a physician / member / specialist / /
March, 2009 National Porphyria Awareness Week — It’s All About YOU March 28-April 4,