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REPORT ON RARE DISEASE RESEARCH, ITS DETERMINANTS IN EUROPE AND THE WAY FORWARD May 2011
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Document Date: 2011-07-28 04:27:50


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File Size: 1,45 MB

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City

Rares / Paris / Manchester / Milan / Lyon / Marseille / Barcelona / Helsinki / Warsaw / Bruxelles / Berlin / Rome / Antwerp / /

Company

Adienne Srl / EHealth / /

Continent

Europe / /

Country

Switzerland / Hungary / Netherlands / Estonia / Bulgaria / Cyprus / Latvia / Norway / France / Portugal / Slovakia / United Kingdom / Malta / Lithuania / Finland / Denmark / Germany / Romania / Croatia / Italy / Slovenia / Sweden / Poland / Belgium / Turkey / Austria / United States / Luxembourg / Spain / Greece / Ireland / Czech Republic / /

Event

Product Issues / /

Facility

University of Manchester / Centre Léon Bernard / University Hospital Bonn / Leiden University Medical Center / Newcastle University / Heidelberg University / St Mary's Hospital / Uppsala University / University of Lübeck / Medical University of Vienna / University of Bergen / Federico UU University / University of Leuven / University of Pavia / Karolinska Institute / Hospital Vall d´HebronCIBERER / University of Tübingen / Sheffield Children’s Hospital / Children's Memorial Health Institute / University of Ferrara / /

IndustryTerm

usual law / communication technologies / somatic cell therapy products / medicinal products / pharmaceuticals / gene therapy products / pharmaceutical legislation / biotechnology area / biotechnology / health information systems / medicinal product / orphan medicinal products / /

MedicalCondition

rare diseases / dysfunction / homozygous familial hypercholesterolemia / genetic diseases / diseases / chronically debilitating diseases / disorders / Mendelian disorders / Healthcare Research Rare Diseases / common diseases / rare diseases Rare diseases / rare infectious diseases / Disease / rare disease / distinct rare diseases / /

MedicalTreatment

innovative therapies / cell therapy / gene therapy / /

Organization

Genetic Alliance UK / Universität München / Committee for Advanced Therapies / Newcastle University / Federico UU University / Naples / European Parliament / San Matteo Hospital Foundation / Children's Memorial Health Institute / Heidelberg University / University of Lübeck / University of Ferrara / Medical School Hannover / European Commission / FDA / University of Manchester / European Union / Committee for Orphan Medicinal Products / University of Pavia / PHG Foundation / Sheffield Children’s Hospital / Leiden University Medical Center / University of Tübingen / Committee for Medicinal Products for Human Use / St Mary's Hospital / Karolinska Institute / University of Bergen / Radboud University Nijmegen Medical Centre / European Medicines Agency / University of Vienna / University of Leuven / Uppsala University / /

Person

Natalia Martin (Orphanet) / Virginie Hivert (Orphanet) / S. Aymé / V / Craig Stevens (Orphanet) / Céline Angin (Orphanet) / VAN OMMEN / Johann den Dunnen (Leiden) / VAN OVERVELD / Nicolas Doulet (Orphanet) / Mariana Jovanovic (Orphanet) / Ségolène Aymé (Orphanet) / PIANTANIDA PIZZERA / Robert Debré / Charlotte Rodwell / William Harvey / ASHTON-KEY / Alan Rector / Peter Robinson / RAY COQUARD / /

Position

Directorates General / EUROPE AND THE WAY FORWARD Strategies / Directorate General Research / way forward / EUROPE AND THE WAY FORWARD / Directorate General / driver / principal investigator / /

Product

gene / /

Technology

information technologies / cell therapy / Human Genome / communication technologies / CAT / Bioinformatics / biotechnology / cloning / gene therapy / knowledge management / /

URL

www.rdplatform.org / http /

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