Institute of Medicine / Rayburn House Office Building / / /
IndustryTerm
Rare Disease Therapies / humanitarian use devices / patient services / healthcare / rare disease healthcare ecosystem / therapies for rare disease / healthcare system / therapies for rare diseases / tissue banking / Therapeutics for Rare and Neglected Diseases / healthcare costs / health insurance plans / /
MedicalCondition
rare diseases / basic and translational rare disease / both rare and common diseases / Healthcare System Rare diseases / early career rare disease / common diseases / Alzheimer’s Disease / disease / Neglected Diseases / rare disease / rare disorders / diseases / Rare and Neglected Diseases / nation’s rare disease / Inborn Errors of Metabolism / entire rare disease / /
Organization
National Institute of Health / Food and Drug Administration / Institute of Medicine / Energy & Commerce Committee / U.S. House of Representatives Committee on Energy & Commerce / Centers for Disease Control and Prevention / Medicare / Congress / Federal government / office of Rare Diseases Research / National Organization for Rare Disorders / National Center for Advancing Translational Sciences / FDA / Congressional Research Service / House Committee on Energy & Commerce / Department of Health / /
Person
Upton / Peter L. Saltonstall / Diane Dorman / / /
Position
investigator / Vice President of Public Policy / advocate / Chairman / President and CEO / representative / /
June 13, 2014 The Honorable Fred Upton, Chairman U.S. House of Representatives Committee on Energy & Commerce 2125 Rayburn House Office Building