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1	Gift Aid declaration – for past, present & future donations Rare Disease UK is an initiative of Genetic Alliance UK, registered charity numbersand SCO39299 Please treat as Gift Aid donations all Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2016-05-03 10:31:50
2	Gift Aid declaration – for past, present & future donations Rare Disease UK is an initiative of Genetic Alliance UK, registered charity numbersand SCO39299 Please treat as Gift Aid donations all Add to Reading List Source URL: www.raredisease.org.uk - Date: 2016-05-03 10:31:50
3	STATEMENT FROM LIBRARY COPYRIGHT ALLIANCE (LCA) WIPO INTERGOVERNMENTAL COMMITTEE ON INTELLECTUAL PROPERTY AND GENETIC RESOURCES, TRADITIONAL KNOWLEDGE AND FOLKLORE – Add to Reading List Source URL: www.librarycopyrightalliance.org Language: English - Date: 2015-03-18 11:26:12 Intellectual property law Information Library science Monopoly Knowledge Copyright law Oral tradition Traditional knowledge Intellectual property Copyright Preservation American Library Association
4	Fundraising Pack Ideas for raising money to support Rare Disease UK’s work Rare Disease UK Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2016-07-21 10:36:39 Rare diseases Genetic Alliance UK Fundraising
5	Collagen VI Alliance – Call for Projects 2015 A new international alliance has been established by AFM-Téléthon, the Muscular Dystrophy Campaign, Muscular Dystrophy Ireland, Cure CMD and the Swiss Foundation for Rese Add to Reading List Source URL: www.afm-telethon.com Language: English - Date: 2014-10-01 05:04:33 Medical genetics Collagen VI Collagens Collagen disease Collagen Muscular Dystrophy Campaign Neuromuscular disease Bethlem myopathy COL6A2 Muscular dystrophy Health Genetic genealogy
6	Consultation response The Medical Innovation Bill Department of Health Response by Genetic Alliance UK, 24th AprilIntroduction Add to Reading List Source URL: www.geneticalliance.org.uk Language: English - Date: 2014-09-28 08:49:11 Clinical research Cancer research Epidemiology National Health Service Genetic Alliance UK Bolam v Friern Hospital Management Committee Clinical trial National Institutes of Health Medical genetics Medicine Health Nursing research
7	EU XXV.GP Eingelangt amEUROPEAN COMMISSION Add to Reading List Source URL: www.parlament.gv.at Language: English - Date: 2014-09-08 03:05:23 Rare disease Science Orphan drug Chronic Orphanet European Union Genetic Alliance UK European Organization for Rare Diseases Health Medicine Epidemiology
8	European Strategy on Rare Diseases is Adopted by Health Ministers of the EU A European strategy that calls upon Member States to implement national plans for rare diseases, before the end of 2013, was adopted by the Coun Add to Reading List Source URL: www.grdo.ie Language: English - Date: 2009-07-19 14:42:12 Rare disease European Organization for Rare Diseases Orphan drug Cystinosis Disease Genetic Alliance UK Rare Disease Day Health Epidemiology Medicine
9	Now is the Time: A Strategy for Rare Diseases is a Strategy for all Canadians EXECUTIVE SUMMARY: CANADA’S RARE DISEASE STRATEGY Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2015-05-25 10:02:13 Epidemiology Rare disease Canadian Organization for Rare Disorders Healthcare Orphan drug Chronic Medical home European Organization for Rare Diseases Genetic Alliance UK Health Medicine Health economics
10	EN COUCIL OF THE EUROPEA UIO Council Recommendation on Add to Reading List Source URL: www.grdo.ie Language: English - Date: 2009-07-19 14:42:07 Rare disease Orphan drug Public health Chronic Genetic Alliance UK European Organization for Rare Diseases Health Health economics Epidemiology

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