Optimising Resources / Cross Party Group / Northern Ireland Rare Disease Partnership / Rare Disease UK / Ataxia South Wales / /
Country
Northern Ireland / United Kingdom / Scotland / Ireland / Wales / /
Event
Person Communication and Meetings / Judicial Event / Person Travel / /
Facility
UCL Institute of Child Health / Scottish Parliament Member’s Restaurant / Institute of Child Health / Great Ormond Street Hospital / /
IndustryTerm
care of those affected by rare diseases / health services / care for rare disease / care services / healthcare / Rare Disease Care / treatment of rare diseases / care of patients with rare diseases / /
Genetic and Rare Disorders Organisation / National Alliance / UK Government / Council of the European Union / Secretariat for the Cross Party Group / second RDUK Secretariat / Great Ormond Street Hospital / Centre of Excellence / Institute of Child Health / Department of Health / NHS / /
Person
Gail Currie / Lesley Loeliger / Alastair Kent / Earl Howe / Baroness Tessa Blackstone / Philip Beales / Alex Neil / Malcolm Chisholm / Mark McDonald / Natalie Frankish / Joe Fitzpatrick / David Goldblatt / Nannette Milne / Bobby Gaspar / Rosalind Smyth / Maureen Watt / Mike Berwick / Mark Drakeford / Emma Hughes / Alan Thomas / Aileen McLeod / /
Position
RDUK Chair / Minister / Cabinet Secretary / Parliamentary Under Secretary / Secretary of State / Professor / Deputy Director / Director / leader in research and development / Liz Kendall MP / Executive / Development Officer / Director of Clinical Research & Development / Chair / OBE Chair / Development Officer in Wales / /
The National Alliance for people with rare diseases & all who support them Report of Activity 2013