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Healthcare / Rare disease / Health care / Ministry of Health / World Health Organization / Genetic Alliance UK / Health / Medicine / Epidemiology


Contribution to shaping a policy
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Document Date: 2013-10-09 08:43:52

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Company

Welfare / France France / The High Level Group / Health / /

Continent

Europe / /

Country

Italy / Bulgaria / Sweden / France / Spain / Denmark / /

IndustryTerm

care for rare diseases / good information systems / care systems / healthcare / informed clinical management / expert / ad hoc working / treatment of rare disorders / treatment of rare diseases / specialised services / /

MedicalCondition

particular disease / rare diseases / rare and genetic diseases / single specific disease / rare diseases Rare diseases / disease / Congenital Disorders / rare disease / distinct rare diseases / rare disorders / diseases / OF RARE DISEASES / disorders / /

Organization

National Board of Health / Reference Centre / Italian Government / Consumer Protection Council / SANCO Rare Diseases Task Force / European Organisation for Rare Diseases / European Commission’s Public Health Directorate / Task Force / European Commission / EURORDIS / European Commission Public Health Directorate / European Union / Federation of County Councils / Task Force on Rare Diseases / Department of Health / Council of Health Ministers / Ministry of health / /

Person

Edmund Jessop / Ségolène Aymé / Helen Dolk / /

Position

National Specialist / Director of the Eurocat Programme on Congenital Disorders / Director of the Orphanet Database of Rare Diseases / deputy leader / individual specialist / /

SocialTag