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Medical terms / Rare Disease Day / Rare diseases / European Organization for Rare Diseases / Medical diagnosis / Disease / Genetic Alliance UK / RDCRN Contact Registry / Health / Medicine / Epidemiology


Document Date: 2012-06-18 06:50:36

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City

Dublin / /

Company

European Reference Networks / The Irish Platform / Tony Heffernan / Rare Diseases Steering Group / Medical Research Charities Group / Twitter / Facebook / /

Continent

Europe / /

Country

Ireland / /

Event

FDA Phase / /

IndustryTerm

online consultation process / e-newsletter / treatment of rare diseases / health care services / Internet Other individuals / media representatives / /

MedicalCondition

lack of coordination / Rare Diseases / rare disease / 1P36 Deletion syndrome / CEO Fighting Blindness / disorders / /

MedicalTreatment

occupational therapy / counselling / /

Organization

Seanad / European Council of Health Ministers / Genetic and Rare Diseases Organisation / Rare Disorders Organisation / Helen McAvoy Institute Public Health / Joint Committee / Science and Industry / Saoirse Foundation / National Rare Disease Office / European Union / Irish Cancer Society / Department of Health / Patients' Organisation / Steering Group / Joint Committee on Health / European Organisation for Rare Diseases EURORDIS / /

Person

Fighting Blindness / James Reilly / Tony Heffernan / John McCormack / Avril Daly / /

Position

Founding CEO / CEO / Chairman / condition Hospital Consultant / Minister / Vice President / hospital consultant / advocate for the development / nurse / Chairperson / consultant / Chairman of the Taskforce / /

Product

Rare Diseases On / Rare Diseases / /

URL

http /

SocialTag