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Medical terms / Epidemiology / Rare disease / European Medicines Agency / Electronic health record / Genetic Alliance UK / Patient safety / Orphan drug / Public health / Health / Medicine / Health economics


Document Date: 2014-03-17 13:34:58

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File Size: 1,10 MB

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City

Madrid / Dresden / Budapest / Bucharest / Paris / Kolding / Essen / Oslo / Udine / Barcelona / Helsinki / Zagreb / Ljubljana / Berlin / Rome / Roma / Prague / Glasgow / London / Tbilisi / /

Company

European Reference Networks / European Union Health Systems / Cross-Border Health Care Expert Group / Italy Hepatic Hemodynamic Laboratory / Medium Enterprises / Rare Disease Partnerships / European Innovation Partnerships / /

Continent

Europe / /

Country

Netherlands / United Kingdom / Italy / Slovenia / /

Facility

Leiden University Medical Center / Children's University Hospital / University of Glasgow / University of Zagreb / Institute of Rare Diseases Research / National Institute / Reporting National Institute of Public Health / Slovenia Institute of Genomic Medicine / Ukraine National Institute of Public Health / The Netherlands National Institute / Germany University of Pavia / Rare Disorders Semmelweis University / University Hospital / Tbilisi State Medical University / Hospital Lillebaelt / Hospital Clinic / Hospital Clínic / University of Barcelona / /

IndustryTerm

diagnosis networks / health services / tele-expertise tools / communication technologies / safer healthcare / medicinal products / technological solutions / healthcare quality / care of rare diseases / greater networking / highquality healthcare / health systems / e-health / technologies / online privacy rights / registry networks / sustainable health systems / shared solutions / care for rare disease / healthcare / pharmaceutical / social services / rare disease care / electronic data processing / communication technology applications / healthcare services / web-based multi-disease platform / orphan medicinal products / /

MedicalCondition

rare diseases / diseases / common diseases / specific diseases / Spinal Muscular Atrophy / disease / Italy Leiden Muscular Dystrophy / rare disease / /

Organization

Germany University of Pavia / Italy Department of the Health Services / Public Health Monitoring and Reporting National Institute of Public Health / National School of Public Health / Management and Professional Development / Center for Human and Clinical Genetics / Italian Medicine Agency / Spain Project Management Agency / Romania Centre for Rare Diseases / European Parliament / London School of Economics / London / Germany Department of Human Genetics / Directorate of Health / Slovenia Institute / The Netherlands Service d'Hémato-Oncologie Pédiatrique Hopital Trousseau / France Technical University / School of Medicine / European Assessment Office / Genomic Medicine and Rare Disorders Semmelweis University / University of Barcelona / European Commission / European Union / Ministry of Health / Liver Unit / Czech Republic Kharkiv Charitable Foundation / UK Technical University / Norway Department of Paediatrics / EU Committee of Experts / National Institute for Public Health and the Environment / National Centre for Rare Diseases / Medical Faculty / University Hospital / Leiden University Medical Center / UK Rehabilitation and Rare Disorders Department / University of Glasgow / Executive Agency for Health and Consumers / Spain Center for Health Services Research and Evaluation / National Institute for Health / Children's University Hospital / Ukraine National Institute of Public Health / European Medicines Agency / University of Zagreb / Innovation Union / Tbilisi State Medical University / German Aerospace Center / Institute of Rare Diseases Research / /

Person

Maurizio Luisetti Milan Macek Vitaliy / Elena M. Nicod Karaman Pagava / Juan Carlos Garcia-Pagán / Maria Judit Molnar Elena / Nona Chiriac Laura Deroma / Vitaliy Matyushenko Matic Meglic Maria / Milan Macek Vitaliy Matyushenko Matic / Johan den Dunnen Jean / Laura Deroma Johan den Dunnen / Salud Carlos III / Ester Garne Alexandra Halbach Panos / Ingeborg Barisic Wolfgang Bödeker Francesc / Wolfgang Bödeker Francesc Cardellach Nona / Alexandra Halbach Panos Kanavos Alastair / Salud Pública / Alastair Kent Wilhelm Kirch Maurizio Luisetti Milan / Faisal Ahmed Stein / Carl Gustav Carus / /

Position

Official / Directorate General / Dirección General / reference model for cooperation on more common diseases / /

Product

Orphan Drug / /

Technology

communication technologies / PDF / Drug development / /

URL

http /

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