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Rare diseases / Epidemiology / Cancer research / European Organization for Rare Diseases / Rare Disease Day / Orphan drug / Genetic testing / Genetic disorder / Genetic Alliance UK / Medicine / Health / Medical genetics


Document Date: 2010-10-21 10:18:46

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City

Dublin / KRAKOW / /

Company

CBS / Alexion / Irish Platform for Patients’ Organisations / Medical Research Charities Group / Muscular Dystrophy Ireland / European Reference Networks / Science and Industry / Inherited Disorders Organisation Limited / /

Continent

Europe / /

Country

Germany / Romania / Bulgaria / Poland / France / Portugal / United Kingdom / Spain / Greece / Ireland / /

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Event

Person Communication and Meetings / Person Travel / /

Facility

Royal College of Surgeons / Carmichael Centre / Dublin Castle / Trinity College / /

IndustryTerm

in vitro diagnostic devices / healthcare / social services / treatment of many rare diseases / healthcare professionals / diagnostic devices / overall healthcare / /

MedicalCondition

each rare disease / Rare Diseases / individual disease / rare disorder / disorder / Friedreichs Ataxia / Pompe Disease / Blindness / rare blood disorder / disease / rare disease / distinct rare diseases / rare disorders / EUROPEAN CONFERENCE ON RARE DISEASES / WITH GENETIC AND OTHER RARE DISORDERS / wipe out testing for almost all rare disorders / /

MedicalTreatment

self-care / /

Movie

Extraordinary Measures / /

Organization

GENETIC AND RARE DISORDERS ORGANISATION / Trinity College / EU Committee of Experts / European Organisation for Rare Diseases / World Health Organisation / National Centre for Medical Genetics / European Commission / Royal College of Surgeons in Ireland / European Union / EU Council / Medical Council / Department of Health / Friedrich’s Ataxia Society of Ireland / Carmichael Centre / European Rare Disease Organisation / European Council of Ministers / /

Person

McALEESE / Andrzej Ry / Yann Le Cam / Jon Beauchamp / Jo-Ann Sheridan / Avril Daly / Ségolène Aymé / Anne Lawlor / Harrison Ford / Jane Farrar / John Crowley / Barbara Flynn / Kieran Murphy / YVONNE CUNNINGHAM / Brendan Fraser / /

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Position

President / Minister / Professor and Chairman / Department of Psychiatry / Director for Public Health / Director of Orphanet / CEO / Professor / Chairperson / representative / Our patron President / /

URL

http /

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