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Medical terms / Rare diseases / Health care / Disease / Genetic Alliance UK / Health / Epidemiology / Medicine


Don’t Stop Research on Rare Diseases! Research on Rare Diseases (RD) and the care of patients living with them have specific needs. Due to the rarity of patients and the scarcity of information related to each rare dis
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Document Date: 2013-03-20 08:29:16


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Continent

Europe / /

Country

Germany / /

IndustryTerm

petition site / /

MedicalCondition

each rare disease / complex diseases / Rare Diseases / disease / X-linked Pigmentary Reticulate Disorder / /

Organization

EU Parliament / LIBE committee / European Union / /

Person

Jan Philipp Albrecht / /

Position

General Data Protection Regulation / EPIRARE Project Manager / /

URL

http /

SocialTag