Oklahoma City / Develop Evidence / Denver / Tulsa / New York / /
Company
AAP / NYMAC Distance Strategies Work Group / ACMG / MCHB/HRSA / NEGC / LTFU / Community Partnerships / Multifaceted Partnerships / Project / RC / Region 4 Genetics Collaborative / Data Work Group / /
Country
United States / / /
Event
Business Partnership / /
Facility
University of Utah / Institute of Child Health / Children’s Hospital / University of Oklahoma Health Sciences Center / University of Utah Genetic Science Learning Center / West Pennsylvania Hospital / Inherited Metabolic Diseases Clinic / /
IndustryTerm
multi-site / medical management / web portals / care for patients with heritable disorders / consumer portal / newborn screening systems / lifespan health management / low-protein food program / clinical portal / telephone consultation / genetic counseling services / travel time / family networking / genetic services / medical services / web-based tool / interdisciplinary network / care services / study systems / data collection tools / practice protocols / evidence-based treatment protocols / care for young adults with sickle cell disease / short-term follow-up systems / food scales / study protocols / web-based electronic medical records technology / clinical genetic services / /
Dimes Foundation / Services Administration’s Maternal and Child Health Bureau / Division of Children / Oklahoma Health Sciences Center / Institute of Child Health and Human / National Coordinating Center / Health Resources and Services Administration / Hispanic/ Latino Community Advisory Committee / Uniformed Services West Chapter / WSGSC Outcomes and Data Work Group / University of Utah / US Preventive Services Task Force / UDOH CDGP / West Pennsylvania Hospital / Advisory Committee on Heritable Disorders / Department of Health / University of Oklahoma / National Center for Medical Home Initiatives for Children / LTFU Workgroup / Family Genetics Education Through School / University of Utah Genetic Science Learning Center / Utah Department of Health Chronic Disease Genomics Program / Syracuse Regional Office / Department of Pediatrics / Colorado Department of Public Health and Environment / UDOH Center for Multicultural Health / Children’s Hospital / Maternal and Child Health Bureau / Mountain States Genetics Regional Collaborative Center / Advisory Committee / Oklahoma State Department / /
Person
Michael S. Watson / Jenny Johnson / Anne Comeau / Theresa Steckel / Donna Cashman / Katharine B. Harris / Ginny Chanda / Alisha Keehn / Cynthia A. Cameron / Joanna Fanos / Jacquie Stock / Judith Benkendorf / Joyce Hooker / Louisa A. Stark / Robert Cicco / Amy Schwartz / Susan Waisbren / Janet Thomas / Susan Berry / Region / Rebecca Giles / Louisa Stark / / /
Position
Director / NCC / Health Program Specialist / part-time RN Sickle Cell Clinic Coordinator / Executive Director / Education Coordinator / Secretary / Administrator / Program Manager / Director / Southeast NBS and Genetics Collaborative Southeast NBS / Project Coordinator / WSGSC Project Evaluator / Project Manager / Director / Genetic Science Learning Center / Manager / NCC The / public health nurse / Project Director / Teacher / Coordinator / Deputy Director / Director / full-time RN Sickle Cell Clinic Manager / metabolic dietician / metabolic nurse specialist / specialist and primary physician / /
ProvinceOrState
Virginia / Maine / New York / Utah / Montana / Rhode Island / Oklahoma / Georgia / Vermont / Illinois / Massachusetts / New Hampshire / /
PublishedMedium
the National / /
Region
new england / West Pennsylvania / /
Technology
practice protocols / NBS Information System / web-based electronic medical records technology / genotype / Genomics / evidence-based treatment protocols / study protocols / /
NCC Collaborator May 2008.indd