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Rare diseases / Urea cycle / Urea cycle disorder / Rare Diseases Clinical Research Network / Cancer research / National Institutes of Health / Health / Medicine


Microsoft Word - BUG_17187_UCDC Press Release- Intro to RDN3
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Document Date: 2014-10-22 00:27:41

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File Size: 67,86 KB

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City

Washington / D.C. / /

Company

NCATS / /

Continent

Europe / /

Country

United States / Canada / /

Currency

USD / /

Facility

Children’s Research Institute / /

IndustryTerm

patient advocacy / pharmaceutical industry / data management / newborn screening technology / /

MedicalCondition

rare diseases / urea cycle disorders / rare metabolic disorders / rare disease / injury / rare disorders / diseases / disorders / /

Organization

Rare Diseases Clinical Research Network / Rotenberg Family Foundation / National Institute of Health / Dieter‐Hopp Foundation / O’Malley Family Foundation / Kettering Fund / National Urea Disorders Foundation / Children’s Research Institute / /

Person

Christopher P. Austin / Mendel Tuchman / Mark L. Batshaw / Marshall Summar / Cynthia LeMons / /

Position

principal investigator for the program / administrative director / principal investigator / Executive Director / Director / Physician / Chief and Chief Academic Officer / Chief / Chief Research Officer and Scientific Director / the principal investigator for the program / /

ProvinceOrState

Maryland / /

Technology

newborn screening technology / /

SocialTag