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Pediatrics / Pancreas disorders / Shwachman–Bodian–Diamond syndrome / Personal health record / Health care / Medical record / Rare disease / Health / Medicine / Medical informatics


Supporting Shwachman Diamond Syndrome patients and families with a multifunctional portal Liesbeth Siderius , Shwachman Diamond Syndrome Support Holland, the Netherlands William Goossen RN PhD, Results 4 Care, Amersfoort
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City

BRUSSELS / Amersfoort / /

IndustryTerm

multifunctional portal / social services / health care systems / /

MedicalCondition

UK Rare diseases / rare diseases / Shwachman Diamond Syndrome / /

Position

care Personal health record Improvement Guideline Social Services Local Social services Hematologist Gastrenterologist Dentist Orthopedic surgeon / Harmonised Care Coordinated care Personal health record Improvement Guideline Social Services Local Social services Hematologist Gastrenterologist Dentist / /

Technology

data warehouse / /

URL

www.shwachman.nl / /

SocialTag