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Muscular dystrophy / Facioscapulohumeral muscular dystrophy / Motor neurone disease / Disease registry / Amyotrophic lateral sclerosis / TREAT-NMD / Health / Medicine / Rare diseases


UK FSHD Patient Registry www.fshd-registry.org/uk Libby Wooda, Teresinha Evangelista , Marita Pohlschmidt b, Andrew Graham b, Stuart Watt b, Suzanne Watt b, Cheryl Longman c, Mark Roberts d ,David Hilton-Jones e, Peter L
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Document Date: 2014-05-13 08:53:33

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City

Manchester / Glasgow / London / Birmingham / Plymouth / /

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Facility

Development Centre / University of Oxford / Population pyramid / Agnes Hunt Orthopaedic Hospital / King’s College Hospital / Newcastle University / University College London / Southern General Hospital / /

IndustryTerm

online database / /

MedicalCondition

vascular disease / Retinal vascular disease / muscle weakness / pain / Pulmonary / experience hearing loss / Hearing loss / /

NaturalFeature

Shetland Islands / /

Organization

King’s College Hospital / National Genetics Education and Development Centre / University College London / Newcastle University / Agnes Hunt Orthopaedic Hospital / European Neuromuscular Centre / TREAT-NMD Alliance / Southern General Hospital / University of Oxford / /

Person

Andrew Graham / Stuart Watt / Hanns Lochmuller / Suzanne Watt / Mark Roberts / Marita Pohlschmidt / Peter Lunt / David Hilton-Jones / Fiona Norwood / Richard Orrell / Cheryl Longman / Tracey Wills / Libby Wooda / Libby Wood / /

Position

registry curator / Professor / /

URL

www.fshd-registry.org/uk / www.muscular-dystrophy.org / /

SocialTag