San Francisco / Houston / Louisville / Paris / Salt Lake City / Charlotte / Olympia / St. Louis / Pasadena / Boston / Los Angeles / /
Company
Marca Hispanic LLC / APF / Touch Southern California Support Group / /
Continent
Africa / /
Country
France / United States / Argentina / Lebanon / /
Currency
USD / /
Event
Person Communication and Meetings / Man-Made Disaster / /
Facility
The Porphyria Center / University of Texas / National Human Genome Research Institute / Porphyria Center / A library / Your Good Health The Porphyria Center of The Mount Sinai Medical Center / Fort Collins / /
Holiday
New Year's Day / Christmas / /
IndustryTerm
energy / overseas porphyria / information-sharing network / health insurance component / health insurance / /
MedicalCondition
rare diseases / Congenital Erythropoietic Porphyria / disorder / breast cancer / genetic disease / acute porphyria / genetic diseases / diseases / certain illness / Drug Safety Database For The Acute Porphyrias / porphyrias / overseas porphyria / Holidays Porphyria / porphyria / long-standing Southern California porphyria / disease / rare disease / pain / acute porphyrias / extremely painful illness / relatively commonplace Acute Intermittent Porphyria / /
MedicalTreatment
surgery / /
MusicGroup
the Association / /
NaturalFeature
Mount Sinai / /
Organization
National Human Genome Research Institute / Centre Français / French national porphyria center / UTMB Porphyria Center / Mount Sinai Medical Center in New York / American Porphyria Foundation / Advisory Board / Social Security Administration / Porphyria Center / American Society of Hematology / American Association for the Study of Liver Diseases / FDA / University of Texas / APF Scientific Advisory Board / National Institute of Health / Food and Drug Administration / Knolls Men’s Golf Association / Congress / Scientific Advisory Board / Winston-Salem Fire Department / Board of Trustees / Mount Sinai Porphyria Center / UTMB-Galveston Porphyria Center / The Alliance / French Association of Porphyria Patients / called for strengthening FDA / /
Person
Mary Ann M. Kopie / Ruth L. Smith / Marcia Pike David / Philip G. Hill / Monica Firchow Zila Reichman / Nancy I. Idol / Marc E. Robinson / Rene McLellan / Shirley I. Robertson / Stephanie D. Sizemore / Dolores Brazas / Jeffery Wickliffe / Doris J. Stanley / Doug Jenne / Ian Maynard Carole / Tina Jenne / Catherine M. Henderson / Maggie Leitstein / Karl Anderson / Ann Warnke / Esther Bandy / Deborah R. Loggins / Vince Kuklewski Susan / Steven Sorrell / Glenn Kuklewski / Chul Lee / Robert McGucken Marc / Claus Pierach / Raymond Smith Kathleen Toelkes / Thom Schillinger / Jonathan Pike / Csilla Hallberg / Katherine B. Ellis / Gerald Hiles / Sherif Abdel-Rahman / Desiree Lyon / Lawrence Liu / Gene Bennett / Gagan Sood / Alicia A. McCord / Terri Witter / Robin Miller / David H. Panzera / Manisha Balwani / Steve Stevens / Leslie Dellinger / Sylvie Le Moal / Molly Buffington / Lee Engel Denise / David Thompson / Craig Venter / Ruth M. Murtha / Cherry Schillinger / Richard Miller / Walter Cernik / Denise M. Halbach / Deborah Sorrell / Mira Geffner / Mary G. Carleton / Nancy J. McCormack / Jean-Charles Deybach / Monica Firchow / Susan L. Engel / John H. Giacobbe / Helen L. Chanowsky / Donna Pagano Michelle Letkemann / Maureen PohFitzpatrick / Wyatt Vanoy / Danny L. Hiles / Sara Thompson / Brady Sharon / Andy Turell / Dorit Reichman Ovadia Mary Ann / / /
Position
Care Physician / physician / featured speaker / envoy and advocate / official / Major / one of the original members / VP / board member / speaker / Association President / Fire Engineer / Rare Disease Grant Moves Forward / /
ProvinceOrState
Southern California / Missouri / Utah / California / Texas / Kentucky / North Carolina / Massachusetts / /
4th Quarter, 2008 Merry Christmas and Happy Holidays We Pray God’s Blessings for a Happy and Healthy New Year. Together we have made great strides in diagnosis and treatment of the porphyrias. We look forward to even