Dublin / Tokyo / Athens / Berlin / Amsterdam / Brussels / /
Company
European Research Networks / European Reference Networks / HTAi / EURORDIS / ISPOR / European Research Infrastructure / European Reference Net 03 Yann Le Cam / /
Continent
Europe / /
Country
Russia / United States / Slovakia / Lithuania / Finland / /
Event
Reorganization / Business Partnership / /
Facility
Capacity building / /
IndustryTerm
rare disease therapies / rehabilitation services / direct operator / social media tools / healthcare / social services / healthcare organisation / orphan products / moderated social networks / online communities / Web communications / Online Learning Tools / web server / aim at being a direct operator / /
MedicalCondition
rare diseases / rare cancers / Yann Le Cam Chief Executive Officer Rare diseases / very rare diseases / different rare diseases / Myopathies / disease / Europe-wide rare disease / rare disease / Myopathies NORD / Europe Rare Diseases / le Cancer / sleep disorders / /
Organization
US National Organization for Rare Disorders CORD / World Health Organization / EU Committee of Experts / Board of Directors P. / Executive Committee / EURORDIS’ mission / PO / Canadian Organization for Rare Disorders ORPHANET / EURORDIS Summer School / European Medicines Agency / United Nations / EUnetHTA Stakeholder Forum / EURORDIS Council of National Alliances / European Commission / European Union / Council of Europe / Patients & Consumers Working Party / /
Person
Rare Disorders / /
Position
actor / President / Chief Executive Officer / Vice Chair / President and the Chief Executive Officer / Chair / representative / /
European organisation for rare diseases Activity Report 2012 & WORKPLAN 2013