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2015 Information Pack EURORDIS November 2014 Rare Disease Day 2015 – Official Partners – Participating National Alliances
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Document Date: 2014-11-25 05:44:59

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File Size: 1,80 MB

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City

Brussels / /

Company

Online Resources / Official Partners / Twitter / Google / YouTube / Facebook / EURORDIS Rare Diseases Europe / Allianz / /

Continent

Europe / /

Country

Croatia / United States / Brazil / Spain / /

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IndustryTerm

media contacts / on-line news service / awareness-raising tools / pharmaceutical / social services / social media / healthcare professionals / media coverage / /

MedicalCondition

rare diseases / different rare diseases / disease / rare disease / countless rare disease / /

Organization

Croatian Alliance for Rare Diseases / National Alliance / World Health Organization / Bulgaria National Alliance / European Organisation for Rare Diseases / European Parliament / Czech Republic Czech National Association for Rare Diseases / Council of National Alliances / Organisation for RD / /

Person

Ruxandra Draghia Akli / Terkel Andersen / Ségolène Aymé / /

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Position

President / Director Health / First Lady / Chair / /

ProvinceOrState

Georgia / /

URL

www.rare-bg.com / www.eurordis.org / www.raredisorderscyprus.com / rarediseaseday.org / www.vzacna-onemocneni.cz / www.harsofinland.net / www.sjaeldnediagnoser.dk / www.rarediseaseday.org / www.achse-online.de / www.alliance-maladiesrares.org / www.radiorg.be / www.raredisorders.ca / www.prorare-austria.org / www.rijetke-bolesti.hr / /

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