Ann Arbor / Houston / Carlos Fredes / Toledo / Rochester / Jackson / Birmingham / Boston / Westford / Kansas City / Los Angeles / Chicago / Paris / Antonio / Philadelphia / Syracuse / Charlottesville / VHLFA / Warwick / Spain Jens Straandgard / /
Company
VHL Biobank / Farber Cancer Institute Eli Lilly Fibrogen Inc. / Kidney Cancer Association S&H Marketing Inc. / The Amelia Fund / La Alianza / Biobank / Dana / Amgen Aveo Pharmaceuticals Larry Gorin Janssen Research & Devel LLC / VHL France / /
Country
United Kingdom / Argentina / Switzerland / Hungary / Germany / Belgium / United States / Denmark / France / /
Currency
USD / / /
Event
Funding / FDA Phase / Person Travel / /
Facility
Montefiore Medical Center / Prof Neurological Baylor College of Medicine / Institute of Urology / Suggested hotel / University of Michigan / Massachusetts General Hospital / Berklee College of Music / Mayo Clinic / Clinic Foundation / University of Mississippi Medical Center / Drury Inn / MN Albert-Ludwigs University / TX Clinic Medical Center / Dana Farber Cancer Institute / Virginia Med Center / Beacon Street / University of Eric Jonasch / Anderson Cancer Center / University Eamonn R. Maher / Tikki Bar / Upstate Medical Center / Kansas Med Center / Jefferson Medical College / Building Momentum / Women’s Hospital / Lahey Clinic Institute of Urology / Stanford Stanford Hospital / University of Birmingham / University of Pittsburgh Cancer Institute / Katie Andjus Renaissance Hotel Event The Renaissance Blackstone Hotel / / /
IndustryTerm
316L stainless steel / careful imaging studies / pression devices / energy / bank / Cancer Care / tissue bank / longrange air travel / long airline flights / mechanical compression devices / Internet website / immune systems / /
surgery / birth control / hormone replacement therapy / muscles massage / pain management / brain surgery / self-management / bed rest / Music Therapy / hormone replacement / /
Organization
University of Michigan / Ann Arbor / People’s Federal Savings Bank Pfizer SILVER SPONSORS Barbara Hawkins Institute / Institute of Urology / Stanford University School of Medicine Contact / NY Cleveland Clinic Foundation / Montefiore-Einstein Center for Cancer Care / VHL Family Alliance / University of Eric Jonasch / Harvard Medical School / Kansas Med Center / Berklee College of Music / Harvard School of Public Health / Dana Farber Cancer Institute / Baylor College of Medicine / Houston / TX Clinic Medical Center / Research Advisory Council / the University of Michigan / Montefiore Medical Center / Stanford Stanford Hospital / University of Pittsburgh Cancer Institute / Virginia Med Center / Lahey Clinic Institute of Urology / VHLFA Board of Directors / State Univ. of NY / Alliance for Cancer Research and Support / Upstate Medical Center / Clinical Advisory Council / MN Albert-Ludwigs University / Mississippi Medical Center / Wellness Board of Directors officers / Ministry of Health / Virginia V / Division of Genetics / England M.D. Anderson Cancer Center / Women’s Hospital / Massachusetts General Hospital / University of Mississippi / University of Birmingham / Jefferson Medical College / Amelia Fund / /
Person
Eleanor Rattenberry / Anthony Horton / Sunny Greene / Debra L. Collins / Tina / Foreningen / John Libertino / William G. Kaelin / Jr. / William G. Kaelin / Shinkai Chair / Joyce Graff / Steven K. Libutti / Gerhard Alsmeier / Scott McLean / Jule / Serena Williams / Michael Gorin / Othon Iliopoulos / Mary Weetman / Hartmut P. H. Neumann / Ilene Sussman / Chia-Ling Phuah / William Kaelin / Edward H. Oldfield / Dirk Werbrouck / John A. Libertino / Nikolaos Stathatos / Cristin Hock / Jan Capinegro / Rick Bracey Vol / Karina Villar / Rick Bracey / Suzanne Hanser / Bobby Kramer / Stéphane Richard / Stanford Photos / Mark / Joyce W. Graff / Gayle Greene / Erica Van Pelt / James Bray / Armand Rodriguez / Ian E. McCutcheon / James Gnarra / Gayle Greene Founding / Gennady Bratslavsky / Kaylee / Meir Stampfer / Steven Libutti / Dinner Hall Michael McDermott / Richard A. Lewis / Matt Andjus / Jens Straandgard / Helga Suli-Vargha / Sarah Nielsen / Jane McMahon / Markus Jansen / Van Vuuren / Verein für / Sue / Vanessa / Mary Anne Babineau / Gay Verco / Edith Lassus-Laurent / Vee Vo / Joyce Wilcox Graff / Jon Johnson / / /
Position
Executive Director / physician / Secretary / Treasurer / Office Manager Vice-Chairman of the Board / genetic counselor / surgeon / Editor / Queen / Board Member / fundraiser / nurse / This fundraiser / 29er fund raiser for Rick Bracey Vol / The Pampered Chef / President / Chair / Belgium belgie@vhl.org / Executive Director / Editor / researcher / local artist / Chair International Leadership / Chairman / Director / Music Therapist / Co-Chair / Chair / Sweet Potato Queen / Chairman of the Board / Member / Chairman of Urology / Chairman of the Board of Directors / /
Product
Sutent / Sunitinib / /
ProgrammingLanguage
FL / /
ProvinceOrState
California / Texas / New Jersey / Massachusetts / Michigan / Rhode Island / Mississippi / /
PublishedMedium
Cancer Research / /
Technology
Neurosurgery / http / Second Generation Sequencing technology / /
VHL FAMILY FORUM Volume 21, Number 1