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Acute intermittent porphyria / Variegate porphyria / Hereditary coproporphyria / Erythropoietic protoporphyria / Erythropoietic porphyria / Hepatic porphyria / Systemic lupus erythematosus / Peripheral neuropathy / Hemin / Porphyrias / Health / Medicine


June, 2009 Educating to Save Lives — National Porphyria Awareness Week, 2009 Raising Awareness to Save Lives: Highlights from National Porphyria Awareness Week Sound(ing) Off! About Porphyria on KPRL
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Document Date: 2014-02-26 18:32:43


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City

San Francisco / Houston / Seattle / Kansas City / Stockholm / Vancouver / City / New York / São Paulo / /

Company

the Sun / Global Partners / APF / Sun Precautions / Lundbeck Inc. / Panhematin Update Ovation Pharmaceuticals Inc. / /

Continent

Europe / /

Country

Brazil / South Africa / Colombia / Canada / Germany / Sweden / United States / /

Currency

USD / /

Event

Person Communication and Meetings / Conference Call / M&A / /

Facility

University of Texas Medical Branch / UTMB-Galveston Porphyria Center / University of Oklahoma Health Sciences Center / University of Alabama-Birmingham / University of Texas Medical Branch-Galveston / University of CaliforniaSan Francisco Medical School / Tulane University / University of Missouri / University of Washington / Carolinas Medical Center / Hospital Das Clinicas de Ribeirão Preto / University of Minnesota / /

IndustryTerm

care for patients with this disease / insurance / health insurance premiums / /

MedicalCondition

full-fledged hepatic porphyria / allergies / Acute Intermittent Porphyria / Congenital Erythropoietic Porphyria / Abdominal pain / Respiratory paralysis / double pneumonia / long-time porphyria / acute porphyria / terrible itching / vomiting / very few porphyria / diseases / infection / rare and complicated diseases / disorders / few acute porphyria / nausea / muscle weakness / invited porphyria / important threat facing porphyria / heart attacks / Porphyrias / U.S. PRIMARY CARE PHYSICIAN AND porphyria / only porphyria / Alzheimer’s disease / disease / acute vomiting / pain / serious illness / anemia / APF Dr. Bonkovsky’s Acute Porphyrias / rare diseases / Seizures / disorder / cancer / ALA-Deficiency Porphyria / premiere porphyria / itching / Erythropoietic Protoporphyria / irritation / rash / erythropoietic protoporphyria liver disease / renowned porphyria / cutaneous porphyria / Can Live With Porphyria / common genetic disease / constipation / lupus / porphyria / blisters / rare disease / acute porphyrias / painful itching / /

MedicalTreatment

gene therapy / catheter / hysterectomy / liver transplant / /

Movie

To Be Announced / /

NaturalFeature

California Central Coast / /

Organization

University of Washington / University of Alabama-Birmingham / Carolinas Medical Center in Charlotte / Department of Medicine / Porphyria Center / FDA / University of Missouri / Columbia / Scientific Advisory Board / Colombian Porphyria Foundation / University of Texas Medical Branch / Tulane University / New Orleans / American Porphyria Foundation / Oklahoma Health Sciences Center in Oklahoma City / Sinai School of Medicine / APF Scientific Advisory Board / University of Oklahoma / HealthWell Foundation / NIH office of Rare Diseases Research / University of CaliforniaSan Francisco Medical School / University of Minnesota / /

Person

Milana J. Carlson / Hilda Pearson Victoria / Jeffrey Wickliffe / Karen A. Eubanks / Bradley Freilich / Craig / Kathryn Rolfe / Brendan McGuire / Dick Mason / Bette Jean / Lori Brown / Jeff Lawrence / Karl Anderson / Wesley J. Brazas Janice Erickson / Kenneth Thompson / Variegate Porphyria / Thomas Townsend / Jennifer R. Ewing / Bonnie J. Clark / Herbert Bonkovsky / John Epstein / Sylvia Bottomley / Tina Conley / Megan Railling / Virginia W. Johnson / Cindy H. Burton / Rebecca L. Ross / Glenn McDaniel / Desiree Lyon / Lawrence Liu / C. Edwin Pearson / Barbara Ann Menear / Ruth M. Meade / Ralph Gray Rebecca / Elizabeth Benedict / Natividad M. Horton / Steven Murphy / Neville Pimstone / Frieda B. Diehl / La Reta Jean Roder / Donna Pagano / Mira Geffner / Desiree Lyon Howe / Lisa Kancsar / Boyd Carlson / Michelle Glendenning / Cecil Watson / Manish Thapar / Gerald Benedict / Wendell / Andy Limban / Paul Sheehan Donald / Hope Haley / Carol Thompson / Charles Lourenço / Dolores M. Brazas / Judy Coley Diane / Micheline Mathews-Roth / Toit / Thelma Knapp / Danny Limban / Gay / Margaret Erickson Linda / Jon Pultz / Mildred Peters / Janyce Kamrath / Diane L. Levere / Keith Haley / Chul Lee / Virginia Salgat / Betty Ross Debbie Smith / Maureen B. Poh-Fitzpatrick / Kirsten Crook Kathryn / Matthew Gehm / Gary E. Eyster / Richard D. Levere Gloria / Gene Bennett / Gagan Sood / Gloria R. Sheehan / Clifford Erickson Linda / Eugene Nielsen / Eric S. Gray / Marvin Knapp / Janet K. Gilles / Joseph Bloomer / Peggy Lewis Johnson Dolores / Hans Fischer / Rodger Fulmer / John Epstein Scott Hall / Kathryn M. Muldowney / Betty McDaniel / Monica Firchow / Deann Townsend / Sandra G. Prochazka / Scott Hall / Rudi Schmid / John Rolfe / Eugene Nielsen Anita Miller / Annette Murphy / Gerald Kamrath / Donald L. Johnson / Betty Wasson Janet / Edwin J. Shipley / David McRae / /

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Position

advisor / Care Physician / physician / Professor of Dermatology / board member / consultant / nurse / co-investigator with Dr. Bloomer / head / Professor Emeritus / NPAW Fundraiser / VP / Director / pediatrician / member / specialist / /

Product

sterile water / Solatene / /

ProvinceOrState

Indiana / British Columbia / Texas / São Paulo / Minnesota / Alabama / New York / Missouri / North Carolina / /

PublishedMedium

Annals of Internal Medicine / /

Region

California Central Coast / Latin America / /

Technology

diagnostic tests / gene therapy / transplantation / /

URL

www.healthwellfoundation.org / www.apfdrugdatabase.com / www.porphyriafoundation.com / www.genebennett.net / www.dol.wa.gov/vehicleregistration/parking.html / /

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