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Dravet Syndrome Foundation / Medical terms / Seizure types / Myoclonus / Epileptic seizure / International Dravet Epilepsy Action League / Generalized epilepsy with febrile seizures plus / Epilepsy / Brain / Central nervous system


The Story Behind the Dravet Syndrome Foundation Written by Lori O’Driscoll, Founder and President On January 13, 2005, we were blessed by the birth of our daughter Ciara (Kee-ra), a beautiful baby born without any obvi
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Document Date: 2013-12-03 16:29:32


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City

Monroe / /

MedicalCondition

difficult-tocontrol epilepsy / seizure / myoclonic jerks / specific syndrome / Ciara’s first grand mal seizure / seizures / epilepsy / Dravet syndrome / /

MedicalTreatment

physical therapy / /

Organization

Dravet Syndrome Foundation / Early Childhood Intervention Center / Monroe Elementary School / /

Person

Ciara / Jack Parent / Aidan / Kim Amend / Amanda Renz / Mary Anne Meskis / Janice Stanely / /

Position

President / Medical Advisor / Research Newsletter Editor / /

ProvinceOrState

Connecticut / /

URL

www.dravetfoundation.org / /

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