University of New South Wales / Sydney Children’s Hospital / University of Sydney / The Children’s Hospital / The University of Sydney / Royal Australasian College of Physicians / / /
IndustryTerm
diagnostic and management services / community services / pharmaceutical industry / internet portals / health services / educational services / treatment for people affected by rare diseases / treatment of rare diseases / /
French Parliament / 3Australian Paediatric Surveillance Unit / National Institute of Health / Faculty of Medicine / Paediatrics and Child Health Division / International Network of Paediatric Surveillance Units / Australian Paediatric Surveillance Unit / EU Task Force / office of Rare Diseases / University of Sydney / Sydney Children’s Hospital / University of New South Wales / European Organisation for Rare Diseases / European Parliament / European Task Force on Rare Diseases / 5SMILE Foundation / Rare Diseases Task Force / Australian Organisation for Rare Diseases / Australian Lung Foundation / Steve Waugh Foundation / Association of Genetic Support of Australasia / Respiratory Department / New Zealand Organisation for Rare Disorders / Royal Australasian College of Physicians / European Union / Department of Health / Division of Paediatrics / /
Person
Adam Jaffe / Elizabeth Elliott / Elliott E. Rare / Elliott E. Impacts / Sydney Children / / /
Position
actor / Professor / advocate for affected children / /
doi:[removed]j[removed]01608.x ANNOTATION Call for a national plan for rare diseases Adam Jaffe,1,2 Yvonne Zurynski,3,4 Lyndall Beville5 and Elizabeth Elliott3,4,6