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Hereditary hemorrhagic telangiectasia / Cavernous hemangioma / Center for Cerebrovascular Research / Neurology / Comorbidity / KRIT1 / Biomarker / Rare disease / Medicine / Health / Neurological disorders


  The Journal of Rare Disorders Brain Vascular Malforma on Consor um: Overview, Progress, and Future Direc ons  Amy L. Akers, PhD1; Karen L. Ball, BS2; Marianne Clancy, BS3; Anne M. Comi, MD4; M
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Document Date: 2014-01-30 01:54:23

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City

Boston / Washington / DC / Albuquerque / Monkton / Toronto / Hemorrhage Seizure / Tampa / Durham / /

Company

Coordina / Tissue Bank / RDCRN Data Management / /

Continent

North America / /

Country

Mexico / United States / Aruba / Canada / Spain / /

Currency

USD / /

Facility

laboratory of Dr / Marchuk laboratory / University of Maryland Brain Bank / Disease Research Interchange / Boston Children’s Hospital / University of New Mexico / Duke University / Children’s Hospital / University of Toronto / St Michael’s Hospital / harbor AVMs / TBD University of California / University of California / /

IndustryTerm

tu onal / bility‐weighted imaging / resonance imaging / blood products / normal methodologic technology / coopera ve network / carrier status / imaging / social media / Web‐based communica / blood breakdown products / data management infrastructure / social networks / /

MedicalCondition

glaucoma / rare diseases / headaches / Sturge‐Weber syndrome / headache / cavernous angioma / seizures / Neurological Disorders / intracranial hemorrhage / risks disease / Alcohol Abuse / Coma / focal neurologic deficits / cerebrovascular disease / common Hispanic disease / pulmonary / disorder / neurologic symptoms / Alcoholism / blindness / onal Cavernous Angioma / Weber Syndrome / common medical disorders / paralysis / epistaxis / best procedural seizures / telangiectasia / disease / Hypothyroidism / AA disease / hereditary hemorrhagic telangiectasia / Kidney Diseases / neurovascular disorders / rare disease / Stroke / Diabetes / iatrogenic injury / Rare Disorders / diseases / angioma / each disease / epilepsy / Skin Diseases / disorders / /

MedicalTreatment

radiotherapy / drainage / /

OperatingSystem

PSOs / /

Organization

Johns Hopkins School of Medicine / 9Duke University / Durham / University of California / National Institute of Health / St Michael’s Hospital / Center for Advancing Transla / University of Maryland / 11Boston Children’s Hospital / Yale University / Duke University / Angioma Alliance / Center for Research Resources / Maryland;5 Toronto HHT Centre / Department of Medicine / Center for Advancing / University of New Mexico / University of California / San Francisco / Division of Respirology / University of Toronto / Keenan Research Centre / /

Person

Marianne Clancy / Marie E. Faughnan / Helen Kim / Douglas A. Marchuk / Rudolf Happle / Ludmila Pawlikowska / Karen L. Ball / William L. Young / Charles E. McCulloch / Leslie Morrison / Thomas P. Jacobs / Anne M. Comi / Camino Real / Amy L. Akers / Marsha A. Moses / Rashmi Gopal / Marsha Moses / /

Position

program director / physician / model for development / director / director In many respects / /

Product

Bal / soma / rela / /

ProvinceOrState

New Jersey / Maryland / New Mexico / Florida / North Carolina / California / A. B. / Ontario / /

Region

South Florida / /

Technology

Genomics / neuroscience / normal methodologic technology / tomography / apoptosis / MRI / PSOs / /

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