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Medicine / Medical informatics / Biological databases / Privacy law / Data protection / De-identification / Protected health information / Electronic health record / Medical record / Science / Health / Data privacy


Research Methods & Reporting Anonymising and sharing individual patient data Khaled El Emam,1, 2 Sam Rodgers,3 Bradley Malin4 1Children’s
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Document Date: 2015-03-20 06:15:45


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File Size: 265,42 KB

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City

Sandercock / London / /

Company

SAS Users Group / Członkowska A / Norton / International Stroke Trial Collaborative Group / Wellcome Trust / Sun J. Publishing / CRC Press / Analysis Portal48 Furthermore / Medtronic / GlaxoSmithKline / National Academies Press / Neri E Corporation T / Bhattacharjee Y. Pharma / BMJ Group / The Immport Immunology Database / Privacy Analytics / BMJ Publishing Group Ltd / Bloomberg / /

Continent

North America / Europe / /

Country

United States / Canada / /

Currency

USD / /

/

Facility

National Human Genome Research Institute / University of Ottawa / Children’s Hospital of Eastern Ontario Research Institute / Children’s Hospital of Eastern Ontario / Vanderbilt University / National Library / Canadian Institute / Hospital of Eastern Ontario Research Institute / Wellbeing Centre / Harvard University / /

IndustryTerm

Internet Res / software tools / computational algorithms / pharmaceutical / medicinal products / software applications / anonymisation software / health insurance number / /

MedicalCondition

rare diseases / Tamblyn R. Rare visible disorders/diseases / injury / cancer / disease / rare disease / diabetes / /

Organization

Data Protection Working Party / National Human Genome Research Institute / National Institute of Health / Data Privacy Lab / Sam Rodgers / 3 Bradley Malin4 1Children’s Hospital of Eastern Ontario Research Institute / Harvard University / Yale School of Medicine / Ottawa 3Earls Court Health and Wellbeing Centre / office of the Privacy / Medical Research Council / Children’s Hospital of Eastern Ontario / Center for Outcomes Research & Evaluation / Yale University / European Medicines Agency / Vanderbilt University / Information Commissioner’s Office / Research Ethics Board of the Children / Technical Advisory Committee / University of Ottawa / Ottawa / European Union / Children’s Hospital of Eastern Ontario Research Institute / Department of Health / NHS / School of Electrical Engineering and Computer Science / Canadian Institute for Health Information / There / /

Person

Sweeney L. Matching / Khaled El Emam / /

Position

data custodian / data analyst / clinical chief information officer / researcher / Commissioner / reporter / /

ProgrammingLanguage

EC / /

ProvinceOrState

Ontario / /

PublishedMedium

PLOS Genetics / PLoS One / /

Region

Eastern Ontario / /

SportsEvent

The Heritage / /

Technology

bioinformatics / data warehouse / html / Human Genome / pdf / jsp / anonymisation software / /

URL

www.wellcome / www.mrc.ac.uk/research/research-policy-ethics/data-sharing / www.bornontario.ca / http /

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