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Lipid storage disorders / Rare diseases / Batten disease / Scoliosis / Neuronal ceroid lipofuscinosis / Alternative medicine / CLN3 / Marfan syndrome / Human vertebral column / Health / Anatomy / Medicine


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Document Date: 2012-06-25 11:51:23

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City

Oceanside / Jacksonville / St Louis / Phoenix / Belo Horizonte / /

Company

UPS / Nestle Corporation / BDSRA Kim Zellmer / /

Continent

North America / Europe / /

Country

Germany / United States / Brazil / /

Currency

USD / /

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Facility

Airport Marriott / Washington University / University of Texas Southwestern Mark Sands / Janeway Children‟s Hospital / /

IndustryTerm

local media / pharmaceutical industry / food / energy / /

MedicalCondition

muscular dystrophy / Juvenile scoliosis / ALS / NCL disease / Marfan‟s syndrome / muscle spasms / really bad rash / injury / disorder / there chronic back pain / Lysosomal Storage Disease / Infantile Batten disease / MS / RN Scoliosis Scoliosis / birth defects / Late Infantile Batten Disease / scoliosis / cerebral palsy / idiopathic scoliosis / brain pathology / absence seizure / tumors / disease / metabolic diseases / certain infections / rheumatic diseases / rare disease / seizure / inherited connective tissue disease / inflammatory conditions / Neuronal Ceroid Lipofuscinoses / diseases / osteoporosis / epilepsy / infection / Batten disease / appendicitis / /

MedicalTreatment

Chiropractic manipulation / Bone marrow transplant / surgery / gene therapy / incisions / /

Organization

Minnesota Chapter / Alzheimer‟s Drug Discovery Foundation / National Institute of Health / s South America Chapter / Taylor‟s Tale Foundation / Batten Disease Support and Research Association / US Federal Reserve / Janeway Children‟s Hospital / Hayden‟s Hope Batten Foundation / FDA / Washington University / Beyond Batten Disease Foundation / University of Texas / /

Person

Gustavo / Taylor / Ruth Williams / Raquel de Faria / Sandra Hofmann / Has Goebel / Hayden / Danielle M Kerkovich / Christine Thelen / Kim Zellmer / Débora / Mark Sands / Noah Coughlan / Jennifer / Lance Johnston / Sharon King / Adina Ryan / Nancy Carney / Sara Mole / /

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Position

Principal Scientist / Executive Director / President / Vice President / Director of Development On / neurologist / orthopedic spinal specialist / nurse coordinator of the neurology department / e-mail fundraiser / Director This / pediatrician / Illuminator / surgeon / King / Director of Development / /

Product

Tegretol / /

ProgrammingLanguage

FL / /

ProvinceOrState

Missouri / Florida / California / Arizona / /

Region

Southern U.S. / /

Technology

pdf / gene therapy / Drug Discovery / /

URL

www.BDSRA.org/noahrun.html / http /

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