ABC / Rett Syndrome Research Trust / Consumer Reference Group / MacKeith Press / /
Country
United States / Netherlands / China / Sweden / / /
Event
FDA Phase / Person Travel / /
Facility
Shenzhen Children’s Hospital / Boston Children’s Hospital / /
Holiday
New Year's Day / Christmas / /
IndustryTerm
aussierett@ichr.uwa.edu.au Web / clinical management / /
MedicalCondition
gallbladder disease / ausTralian rett syndrome / In Rett syndrome / MECP2 Duplication disorders / rare disorders / gall bladder disease / epilepsy / abdominal bloating / gastroesophageal reflux disease / constipation / gastrointestinal disorders / Rett Syndrome / /
MedicalTreatment
speech therapy / /
Organization
Boston Children’s Hospital / Congress / Shenzhen Children’s Hospital / Shenzhen Rett Syndrome Family Association / /
Person
Alison Anderson / Walter Kaufmann / Helen Leonard / Willem Voncken / Jenny Downs / Witt Engerstrom / Stories Meet Ruby Balkwell / Helen / Caitlin Marr / Anna Urbanowicz / Monica Coenraads / Leonard H. Longitudinal / Stephanie Fehr / / /
In the Media A story on Rett Syndrome was included on the ABC 7.30 report in Western Australia on 31 MayIt featured the stories of two WA families and their personal experiences with Rett syndrome. Helen and Jenny