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Glycoproteinosis / Lysosomal storage disease / Alpha-mannosidosis / Mannosidosis / Beta-mannosidosis / Fucosidosis / Mucolipidosis / The Organ / Sialidosis / Health / Rare diseases / Biology


Pathways: 2011: No. 2 A publication of ISMRD Important dates to mark on your Calendars
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Document Date: 2014-09-02 17:38:46

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City

Rockville / Minneapolis / Baltimore / Charleston / /

Company

Zymenex Holding A/S / Facebook / Zymenex / Genzyme / ACE BioSciences A/S / Twitter / /

Country

Netherlands / Bulgaria / Colombia / Brazil / Canada / United Kingdom / India / Italy / New Zealand / United States / Greece / /

Currency

USD / /

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Event

Person Communication and Meetings / /

Facility

Crown Plaza Hotel / Mayo Clinic Hospital / Natural History Clinic / Crowne Plaza / University of Minnesota / Airport Convention Centre Hotel We / /

IndustryTerm

care of the complex symptoms / treatment of the rare / lysosomal disease / high travel costs / lysosomal enzyme products / /

MedicalCondition

Metachromatic Leukodystrophy / Beta Mannosidosis / Alpha Mannosidosis / Sialidosis / terminal tumor / Related Storage Diseases / Mannosidosis / very rare diseases / Fucosidosis / Beta-Mannosidosis / Host Disease / rare / lysosomal disease Globoid Cell Leukodystrophy / sarcoma / diseases / I-Cell Disease / Chronic Myelogenous Leukemia / Mucolipidosis II / Pseudo-Hurler Polydystrophy / Schindler Disease / disorders / Mucolipidosis III / Krabbe Disease / Rare Genetic Diseases / strange disease / Glycoprotein Storage diseases / Alpha-Mannosidosis / strange and dire diseases / similar diseases / disease / shock / cancerous tumor / Related Disorders / Mucolipidosis / serious illness / /

MedicalTreatment

kidney transplant / dialysis / Bone Marrow Transplant / enzyme replacement therapy / /

Organization

FEIN / European Commission / European Union / Mayo Clinic Hospital in Phoenix / External Review Committee / Cathey’s Charleston Office / ISMRD’s mission / International Advocates for Glycoprotein Storage Diseases / University of Minnesota / /

Person

Jenny Smith / Taryn / Debora Forman / Trish Adkins / John Forman / Judith Forman / Pam Tobey / Syeda Adia Zaidi / Sarah Ali / Jason / Sonja Woolley / Yusuf / Dianne / Sara Cathey / Jenny Noble / Steve / Theo Prasidis / Antonn Peach / Martin Woolley / Mercy Flights / Andrea Gates / Jean Leonard Chris / Pam Toby / /

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Position

President / Advocate / step forward / psychologist / forward for these very rare diseases / /

Product

Pseudo / Gleevec / Penguin / /

ProvinceOrState

Minnesota / South Carolina / California / Arizona / Maryland / /

PublishedMedium

Natural History / the Natural History / /

SportsEvent

the Rugby World Cup 2011 / /

Technology

dialysis / Alpha / MRI / cellular telephone / /

URL

www.ismrd.org / http /

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