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Experiences of Rare Diseases: An Insight from Patients and Families By Lauren Limb, Stephen Nutt
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Document Date: 2010-11-25 14:02:16

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File Size: 2,99 MB

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City

Manchester / Newcastle / /

Company

RDUK / Rare Disease UK / /

Continent

Europe / /

Country

United Kingdom / Northern Ireland / Scotland / Wales / /

Event

Judicial Event / /

Facility

Homewood / /

IndustryTerm

appropriate services / patient / healthcare professionals / adult services / children services / online survey / /

MedicalCondition

cerebellar ataxia / muscular dystrophy / Rare Diseases / really bad chest infection / congenital myasthenic syndrome / disease / flu / bad coughs / migraines / yuppie flu / Patient / ocular myasthenia gravis / rare disease / tumour / Ollier’s disease/Maffucci syndrome / Langerhan’s cell histiocytosis / diseases / rare genetic disorders / same rare disease / Patient / acute intermittent porphyria / craniopharyngioma / different rare diseases / /

NaturalFeature

Channel Islands / /

Organization

Genetic Alliance UK / European Commission / Myasthenia Gravis Association UK / European Union / NHS / Council of the European Union / /

Person

Fiona Fisher / Charles / Toby Mildon / Craig Mitchell / Alastair Kent Chair / Carl Tilson / Kate Bushby / Miranda / Anna Pickering / Gemma Mitchell / Jo Grey / Kay Parkinson / Gillian Thomas / Alev Sen / Stephen Nutt / Lauren Limb / /

Position

Professor / Director / Anne Begg MP / Chair / representative / /

PublishedMedium

Foreword / /

Technology

diagnostic tests / /

URL

www.raredisease.org.uk / www.actionduchenne.org / /

SocialTag