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NHS Scotland / National Health Service / Health informatics / NHS England / NHS National Services Scotland / Health care / Genetic Alliance UK / Scottish Government Health and Social Care Directorates / Telehealth / Health / Medicine / Healthcare in Scotland


IT’S NOT RARE TO HAVE A RARE DISEASE
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Document Date: 2014-07-08 10:07:06

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File Size: 1,18 MB

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City

Glasgow / /

Company

National Managed Clinical Networks / Social Care Partnerships / Managed Diagnostic Networks / Professional Reference Group / /

Country

United Kingdom / Scotland / /

IndustryTerm

hours services / technology innovation / telecare technology / health services / clinical services / care services / diagnostic services / healthcare / imaging / specialist health services / appropriate infrastructure / healthcare system / treatment of rare diseases / specialised services / genetic diagnostic laboratory services / health service management / treatment for rare diseases / healthcare services / commission specialist healthcare services / community health services / local services / /

MedicalCondition

Rare Diseases / rare mitochondrial diseases / chronically debilitating disease / rare neuromuscular disease / Phenylketonuria / Medium Chain Acyl-CoA Dehydrogenase Deficiency / Cystic Fibrosis / disease / rare disease / Congenital Hypothyroidism / amyloidosis / diseases / specific disease / Sickle Cell Disease / alkaptonuria / complex neurofibromatosis / /

MedicalTreatment

self-management / neurosurgery / lung surgery / /

Organization

Scottish Government / Local Authority / UK National Screening Committee / Special Board / Scottish Cabinet / NHS Board / Task Force / Scottish Parliament / Alex Neil Cabinet / European Union / NHS National Services Scotland National Specialist and Screening Services Directorate / NHS / National Specialist Services Committee / Integration Joint Board / /

Person

Clyde Lanarkshire Fife Lothian Ayrshire / Alex Neil / /

Position

specialist services / Cabinet Secretary / Secretary / leader / partner and collaborator / Chief / Governor / UK Specialist Services / National Specialist Services / /

Technology

GPS / telecare technology / neurosurgery / /

URL

www.scotland.gov.uk/Resource/Doc/311667/0098354.pdf / www.scotland.gov.uk/Topics/Health/Services/RareDiseases / www.scotland.gov.uk/Resource/0042/00423188.pdf / http /

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