Pew Memorial Trust / Fanconi Anemia Research Fund Inc. / Wilson / NDRI Hal E. Broxmeyer / LAM research / Clinical Services / Genzyme Corporation / VHOs / /
Country
France / United States / /
Currency
USD / / /
Event
Employment Change / Business Partnership / Company Expansion / Product Issues / /
Facility
Blood Institute / National Diabetes Research Interchange / University of Pennsylvania School / Drexel University College of Medicine / Mount Sinai Medical Center / University School / National Disease Research Interchange / /
IndustryTerm
treatment for their disorder / treatment for a rare disease / online catalog / established tissue bank / tissue bank / Online Biospecimen Catalog / Online Biospecimen Catalog Researchers Have Immediate Access / /
MedicalCondition
Ehlers-Danlos Syndrome / just curing sarcoidosis / rare diseases / fatal lung disease / arthritis / cysts / EhlersDanlos syndrome / lymphangioleiomyomatosis / disorder / needed rare disease / made rare disease / very interesting illness / breast cancer / different rare diseases / leukemia / tumor / tumors / shortness of breath / Sarcoidosis AFter / donated rare disease / every disease / diabetes / rare disorders / diseases / disorders / blood-related disorders / Fanconi anemia / several common cancers / tissues representing diseases / sarcoidosis / Rubinstein-Taybi Syndrome / common diseases / wheezing / juvenile diabetes / disease / rare disease / chronic illness / coughing / pain / chronic diseases / granulomatous diseases / granulomas / anemia / tuberculosis / representing over 117 different rare diseases / /
MedicalTreatment
plastic surgery / surgery / hip surgery / sinus surgery / knee replacement surgery / organ transplant / /
NaturalFeature
Mount Sinai / /
OperatingSystem
Microsoft Windows / /
Organization
Foundation for Sarcoidosis Research / office of Rare Diseases / Drexel University College of Medicine / National Heart / Lung / and Blood Institute / Medicare / Intracranial Hypertension Research Foundation / the University of Pennsylvania School of Medicine / Mount Sinai Medical Center / American Society of Hematology / Adenoid Cystic Carcinoma Research Foundation / office of Rare Disease / VHL Family Alliance / Indiana University School of Medicine / National Rare Disease Biospecimen Alliance / Spina Bifida Association / National Institute of Health / Fanconi Anemia Research Fund / Von Hippel-Lindau Family Alliance / Juvenile Diabetes Research Foundation / Alpha-1 Foundation / Ehlers-Danlos National Foundation / VHO / LAM Treatment Alliance / Center for Organ Recovery and Education in Pittsburgh / Foundation for Thymic Cancer Research / Family Alliance / LAM Foundation / Penn Center / Broxmeyer Appointed Board / Walther Oncology Center / Histiocystosis Association of America / /
Person
Stephanie Hunt / Amy Farber / Teirstein He / D. Walter / Joyce Graff / Mike Keough / Joyce Wilcox Graff / Barry Schmetter / Sheila Curristin / Hal E. Broxmeyer / Stephen C. Groft / Beth Sauer / Lee Ducat / Sheila Curristin Ph / Kurt Shutterly / Alvin Teirstein / D. Walter Cohen / Arthur H. Rubenstein / Rick Hasz / Megan Carrier / / /
Position
executive director / President / Professor of Microbiology/Immunology and Scientific Director / Vice President / Chancellor / Director / Rare Disease Program / vice president and president / leading researcher / Manager / researcher / scientist / founding director / director of Von Hippel-Lindau / Chairman / Coordinator / director / Private / clinical trials specialist / Chairman of NDRI’s Board of Directors / member of the board / outgoing Chairman / founder / /
Rare Disease News from National Disease Research Interchange NDRIresource.org