IBM / Innolyst Inc. / Rare Disease Registries / Oracle / Private Access Inc. / Agency for Healthcare Research / /
Country
France / /
Facility
Children's Hospital / National Eye Institute / National Human Genome Research Institute / University of South Florida / American College of Medical Genetics George A. Komatsoulis / National Institute of Neurological Disorders / College of Medicine Global Data Aggregation / USF College of Medicine Chalapathy Neti / USF College of Medicine Stuart Nelson / Vanderbilt University / University Paul A. Harris / National Cancer Institute / National Disease Research Interchange / Children’s Hospital of Philadelphia The National Health Information Network / National Library / Children’s Hospital of Philadelphia Robert H. Shelton / University of Pennsylvania III / University of Pennsylvania School / University of Maryland School / University of Texas Southwestern The Use / University of Texas Southwestern Ian M. Fore / /
IndustryTerm
open source software / Treatment for Patients with Rare Diseases / /
National Cancer Institute / National Human Genome Research Institute / USF College / National Eye Institute / National Institute of Health / University of South Florida / Technology Transfer Center / Harvard University / Food and Drug Administration / Children's Hospital Boston / University of Texas Southwestern Ian M. Fore / Laboratory for Informatics Development / Office for Human Research Protections / Harvard / LAM Treatment Alliance / the University of Pennsylvania / Progeria Research Foundation / Division of Research / University of Maryland School of Law / office of Research Informatics Operation / Center for Biomedical Informatics / University of Pennsylvania School of Medicine and Children’s Hospital of Philadelphia Robert H. Shelton / National Institute of Neurological Disorders and Stroke / Chordoma Foundation / George Washington University / office of Biospecimen / College of Medicine Global Data Aggregation / University of Pennsylvania School of Medicine and Children / National Center for Biotechnology Information / office of Biorepositories / office of Special Health Issues / Lyn Silfen University / Genetic Alliance / Vanderbilt University / National Organization for Rare Disorders / Information Technology / Center for Biomedical Informatics and Information Technology / Center for Outcomes and Evidence / American College of Medical Genetics George A. Komatsoulis / USF College of Medicine Chalapathy Neti / Clinical Center / Emory University School of Medicine and Collaboration / Agency for Healthcare Research and Quality / University of Texas / /
Person
Josh Sommer / Michael S. Watson / Sharon F. Terry / C. Note / Joe V. Selby / Daniel C. Russler / Carolyn C. Compton / Wendy E. Patterson / Simone S. Sommer / Julie Kaneshiro / James J. Cimino / Kate McCurdy / Stephen C. Groft / David S. Goldstein / Sara C. Hull / Santa J. Tumminia / Lisa Forman-Neall / Benjamin M. Greenberg / Christophe Beroud / Amy Farber / Vanessa Rangel Miller / Christopher A. Moskaluk / Andrew Faucett / Jack Schwartz / Dianne M. Finkelstein / Susan M. Love / Barbara I. Karp / Lisa Forman / Ronald J. Bartek / Christopher B. Forrest / Jennifer Farmer / P. Pearl O'Rourke / Paul A. Harris / Marsha A. Moses / Ronald A. Christensen / Kyle Brown / Sukirti N. Bagal / Leslie B. Gordon / Jeffrey A. Thomas / Helen M. Moore / Rachel Richesson / Lynn Etheredge / Jonathan D. Moreno / Jim B. Vaught / Clement J. McDonald / /
Position
Investigator / speaker / Medical School Keynote Speaker / Researcher / Advocate / Keynote Speaker / Professor of Ethics and Professor of Medical Ethics / /
ProvinceOrState
Texas / Maryland / Pennsylvania / Florida / /
Region
South Florida / /
TVStation
Kyle / /
Technology
Information Technology / Biotechnology / Human Genome / Workshop Materials D. Informatics/Database Technology / /
DAY 1 — MONDAY, JANUARY 11