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Drug discovery / Medical terms / Pharmacology / Nursing research / Rare disease / Orphan drug / Chronic / National Institute for Health and Clinical Excellence / Pharmaceutical industry / Health / Medicine / Epidemiology


National Rare Disease Plan for Ireland 2014 – 2018 National Rare Disease Plan for Ireland
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Document Date: 2014-07-03 04:33:06

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File Size: 1,24 MB

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City

Dublin / Europe RoI / /

Company

European Reference Networks / Subgroups Appendix / Subgroups 2 / CPA UK Clinical Pathology Accreditation (UK) Ltd. / Steering Group / National Steering Group / /

Country

Northern Ireland / Ireland / /

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Facility

Care Excellence NIH National Institute of Health NIHR National Institute / Institute of Public Health / NICE National Institute / /

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IndustryTerm

online survey facility / healthcare professionals / health services / care of patients with rare diseases / Online Mendelian Inheritance / information technology / health technology assessment / healthcare / medicinal products / orphan medicinal products / /

MedicalCondition

rare diseases / disease / Rare Cancers / Rare disease / Inherited Disorders / diseases / Duchene Muscular Dystrophy CAVOMP / /

Organization

Health Research NNBSP National Newborn Bloodspot Screening Programme NOWGEN Centre of Excellence / IMD / National Institute of Health / European Medicines Agency / National Institute / NCHCD National Centre / Health Promotion Unit / Institute of Public Health / Inherited Metabolic Disorders NCMG National Centre / Congenital Anomalies EURODIS European Organisation / National Centre for Pharmacoeconomics NGO / Association of Pharmaceutical Manufacturers of Ireland BBMRI Biobanking / Association of Genetic Nurses / Hereditary Coagulation Disorders NCIMD National Centre / European Union / DEPARTMENT OF HEALTH / Department of Health Hawkins House Hawkins Street Dublin / Rare Diseases EuropaBio European Association / UKNEQAS United Kingdom National External Quality Assessment Service / National Institute for Health / Executive Agency for Health / Committee for Orphan Medicinal Products / European Union Committee of Experts / /

Person

James Reilly / John Devlin / /

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Position

GENETESTS Medical Genetic Information Resource GMS General / TD Minister / Governor / HRB Health Research Board HSE Health Service Executive / Minister / Deputy Chief Medical Officer Chairman / Executive / National Specialist Services / Head of Communications / /

ProgrammingLanguage

EC / /

Technology

Integrated Services Directorate IT information technology / /

URL

www.doh.ie / /

SocialTag