Hispanic/Latino / M.D. / acyl-CoA / African Americans/Black / Region 4 LTFU Work Group / Agency for Healthcare Research / NBSTRN-LPDR / Public Health Laboratories / IBEMC / H. Designated Federal Official Health Resources / M.P.H. / M.P.H. Associate / /
Country
United States / / /
Event
Business Partnership / Funding / Conference Call / /
Facility
M.D. University of Maryland Medical System Pediatric Genetics / Medical Genetics Children’s Hospital of Pittsburgh / Pathology Mayo Clinic / American College of Medical Genetics / American College of Obstetricians / Eunice Kennedy Shriver National Institute of Child Health / Family Health New York State Department of Health Corning Tower / Oncology Children's Memorial Hospital / Laboratory Procedures / Family Medicine University of Washington / Center Drive Building / Plaza Box / American College of Medical Genetics Michael S. Watson / Laboratory Genetics Department / F.A.A.P. University of Michigan Health System / Marina Bay Parkway Richmond / Laboratory Medicine / Research University of Utah Salt Lake City / Research University of Utah Research Administration Building / Development University of Minnesota Minneapolis / Laboratory Operations Unit Texas Department of State Health Services P.O. Box / Pediatrics Mayo Clinic / /
American College of Medical Genetics / New York State Department / University of Washington / Development University of Minnesota Minneapolis / Discretionary Advisory Committee on Heritable Disorders / LIAISONS AND ORGANIZATIONAL REPRESENTATIVES American Academy of Family Physicians Frederick M. Chen / Society for Inherited Metabolic Disorders / Association of Public Health Laboratories / University of Maryland / Pediatrics Louisiana State University Health Sciences Center / M.P.H. Chief Executive Officer National Institute for Children / Hematology/Oncology Children's Memorial Hospital / Joint Committee / EX-OFFICIO MEMBERS Agency for Healthcare Research / Research University of Utah Research Administration Building / Department of Pediatrics Louisiana State University Shreveport / Health Resources and Services Administration / Division of Hematology/Oncology Children / Medical Genetics Children’s Hospital of Pittsburgh / F.A.A.F.P. Family Practitioner Department / Child Health Bureau / C.G.C. Northwestern University Feinberg School / M.S. Director National Center on Birth Defects and Developmental Disabilities / Society of Genetic Counselors / Association of Maternal / National Committee / National Coordinating Center’s LTFU Committee / Services Administration Genetic Services Branch Maternal and Child Health Bureau / Institute of Child Health and Human Development / National Society of Genetic Counselors Cate Walsh Vockley / Department of Health / Texas Department of State / Medicine Center for Genetic Medicine / Division of Genetics / American College of Medical Genetics Michael S. Watson / American Academy of Family Physicians / American College of Obstetricians / Food and Drug Administration / Inc / Association of State / Department of Defense LTC Adam B. Kanis Tripler Army Medical Center Honolulu / Scientific Reviewer/Biologist Division of Chemistry / ACOG Committee on Genetics / Research University of Utah Salt Lake City / Strategic Development Genetic Alliance / Chemistry and Toxicology Devices Office / Centers for Disease Control and Prevention / Metabolism Department of Pediatrics / adam.b.kanis.mil@mail.mil Genetic Alliance / Division of Laboratory Genetics Department of Laboratory Medicine and Pathology Mayo Clinic Rochester / Genetic Disease Screening Program California Department of Public Health / Office for Genetics and People / Association of Public Health Laboratories Susan M. Tanksley / American Academy / F.A.A.P. University of Michigan Health System / Children’s Sickle Cell Foundation / Agency for Healthcare Research and Quality / /
Person
Carol Greene / Michael S. Watson / Pediatrics Beth Tarini / Reproductive Genetics / Joseph A. Bocchini / Jr. / Dietrich Matern / Alexis Thompson / Fred Lorey / Melissa Parisi / Michael Lu / Coleen A. Boyle / Nancy C. Rose / Kellie B. Kelm / Andrea M. Williams / Joseph A. Bocchini / Stephen McDonough / Denise Dougherty / Catherine A. L. Wicklund / Susan M. Tanksley / Charles Homer / Siobhan Dolan / Debbie Badawi / Dimes Siobhan Dolan / Frederick M. Chen / Debi Sarkar / Piero Rinaldo / Natasha Bonhomme / Susan Berry / Cate Walsh Vockley / Jeffrey Botkin / Don Bailey / Reproductive Genetics Intermountain Healthcare / Alan E. Guttmacher / Rockville Pike Bethesda / Reproductive Genetics Intermountain / Christopher Kus / Eunice Kennedy Shriver / / /
Position
Secretary of Health / Advisor / Executive Director / Vice President / Chairman Department / Chair Committee / Secretary / The Designated Federal Official / REDCap data sets / Professor of Pediatrics / Professor / C.G.C. Senior Genetic Counselor Division / Administrator / Manager / Medical Director / Designated Federal Official / Medical Advisor / Professor and Director / Professor and Chairman / Director / Chair / REDCap / guttmach@mail.nih.gov DESIGNATED FEDERAL OFFICIAL / Medical Director Division of Family Health / F. Executive Director / B.A. Executive Director / /
Secretary’s Discretionary Advisory Committee on Heritable Disorders in Newborns and Children Summary of 5th Meeting September 11-12, 2014 The Discretionary Advisory Committee on Heritable Disorders in Newborns and Ch