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Neurofibromatosis
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#	Item
101	Be Part of our 2nd Annual Great Steps for NF Walk in Ft. Lauderdale, FL! Dear Friend, The Neurofibromatosis Network (NF Network) is gearing up for our 2nd Annual Great Steps for NF Walk on Saturday, May 3rd at a brand n Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2014-02-12 10:53:43 Health Medicine Neurological disorders Neuro-cardio-facial-cutaneous syndromes Neurofibromatosis type I Genodermatoses Neurofibromatosis NF
102	Details of the Walk: WHERE? Jay Blanchard Park 2451 N Dean Rd. Orlando, FL[removed]printable map available on our website) Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2014-07-15 11:28:48 Health Medicine Neurofibromatosis type I Genodermatoses Neurofibromatosis NF
103	Personal Story and 2014 NF Hero Lindsey Allee! Hello, my name is Lindsey. I am 10 years old and in 5th grade. I really love to listen to music especially 80’s music like Michael Jackson. I love to play on the computer. Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2014-03-06 13:25:59 Medicine Neurofibromatosis type I Health Neurofibromatosis
104	Be Part of our 1st Annual Great Steps for NF Walk in Oxford, NC! Dear Friend, The Neurofibromatosis Network (NF Network) is gearing up for our first ever Great Steps for NF Walk on Saturday, September 27, 2014 in Oxford, Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2014-06-19 14:45:37 NF Neurological disorders Medicine Neuro-cardio-facial-cutaneous syndromes Neurofibromatosis type I Genodermatoses Neurofibromatosis Health
105	Be Part of our 3rd Annual Great Steps for NF Walk in Orlando, FL! Dear Friend, The Neurofibromatosis Network (NF Network) is gearing up for our 3rd annual Great Steps for NF Walk on Saturday, November 8, 2014 in Orlando, Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2014-07-15 11:30:20 NF Neurological disorders Medicine Neuro-cardio-facial-cutaneous syndromes Neurofibromatosis type I Genodermatoses Neurofibromatosis Health
106	Insurance Coverage For Neurofibroma Removal All neurofibroma removals, properly documented, for people with neurofibromatosis, should be covered by most insurance plans. This is medically justified for two reasons: 1) Th Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2012-08-30 12:44:00 Health Medicine Neurofibroma Medicare Medicaid Health insurance United States National Health Care Act Insurance Federal assistance in the United States Healthcare reform in the United States Presidency of Lyndon B. Johnson
107	To Leah, the Sexton Family and everyone affected by NF2. “We cannot change the cards we are dealt, just how we play our hand.” (The Last Lecture, by Randy Pausch) Our hope someday is that there will be no need for Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2013-01-24 13:12:35 Brain tumor Neurosurgery Schwannomatosis Neurofibromatosis type II Vestibular schwannoma Neurofibromatosis Meningioma Merlin Balance disorder Medicine Health Neurological disorders
108	Clinical Manifestations and Management of Neurofibromatosis Type 1 James H. Tonsgard, MD Neurofibromatosis type 1 (NF1) is an autosomal dominant disorder with variable expression. The complications are age specific. Neur Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2012-08-30 12:44:00 Brain tumor Neuro-cardio-facial-cutaneous syndromes Genodermatoses Neurofibromatosis type I Neurofibroma Neurofibromin 1 Pilocytic astrocytoma Pheochromocytoma Vestibular schwannoma Medicine Health Neurological disorders
109	Orphanet Journal of Rare Diseases BioMed Central Open Access Add to Reading List Source URL: www.nfnetwork.org Language: English - Date: 2012-08-30 12:44:00 Neurological disorders Neurosurgery Brain tumor Schwannomatosis Neurofibromatosis type II Genodermatoses Neurofibromatosis Neuro-cardio-facial-cutaneous syndromes Merlin Medicine Health Oncology
110	Genetic Alliance Sharon F. Terry, President & CEO www.geneticalliance.org Perspective  Vision Add to Reading List Source URL: www.hrsa.gov Language: English - Date: 2014-12-04 01:13:38 National Institutes of Health Cancer research Syndromes Bethesda Maryland Rare Diseases Clinical Research Network Neurofibromatosis Genetic disorder Down syndrome Rare disease Medicine Health Medical genetics