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Neurological disorders / Neuro-cardio-facial-cutaneous syndromes / Genodermatoses / Brain tumor / Neurofibromatosis type I / Neurofibroma / Schwannomatosis / Neurofibromin 1 / Legius syndrome / Medicine / Health / Biology


November 2012 Welcome to the first Neurofibromatosis Network’s Science Column, The Network Edge! Every three months, The Network Edge will bring you a summary of the latest news from neurofibromatosis (NF) research and
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Document Date: 2012-11-02 12:34:27


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Grayeli AB / Hanemann CO. / Jordan LC / Avery / Mautner / New England Journal / Pasmant / Bah AB / /

Country

Italy / France / United States / United Kingdom / /

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USD / /

Event

FDA Phase / Product Issues / /

Facility

Massachusetts General Hospital / /

IndustryTerm

standardized testing protocol / clinical management / /

MedicalCondition

chronic and persistent pain / merlin-deficient human schwannomas / NF1 MPNST / plexiform tumor / correct learning disabilities / NF2-related vestibular schwannomas / early onset breast cancer / learning disability / Schwannoma tumors / progressive vestibular schwannomas / NF2 vestibular schwannoma management / Legius Syndrome / NF tumors / skin rash / low-grade gliomas / vestibular schwannoma growth / Highly aggressive MPNSTs / Meningiomas / safe and effective cancer / Noonan syndrome / targeted early breast cancer / hyperactivity disorder / internal neurofibromas / spinal schwannomas / plexiform neurofibromas / NF1-related internal plexiform neurofibromas / highly malignant MPNSTs / another tumor / learning disabilities / subcutaneous and plexiform neurofibromas / NF1-related inoperable plexiform neurofibromas / MPNST tumors / attention deficit disorder / MS / hearing loss / Breast Cancer / plexiform neurofibroma growth / optic pathway glioma / tumor / ADHD / mild learning disabilities / NF2 vestibular schwannomas / Costello syndrome / low grade gliomas / neurofibromatosis type / MPNST / NF1 Learning Disabilities / peripheral schwannomas / tumors / disease / NF1related brain tumor / malignant peripheral nerve sheath tumors / benign and malignant tumors / decreased tumor / carcinogenesis / autism / benign plexiform neurofibroma tumor / vestibular schwannoma volume / children’s cancer / NF1 tumors / NF1 plexiform neurofibromas / skin tumor / neurofibromatosis / internal plexiform neurofibromas / NF1 benign plexiform tumors / MPNSTs / cognitive dysfunction / pain / increased depression / schwannomas / cut / intracranial tumors / optic pathway gliomas / vestibular schwannomas / human MPNST tumor / nerve tumors / hypotonia / deficiency / NF1 tumor / showed tumor / syndrome / disorders / malignant MPNST / genetic disorders / human NF2 tumor / primary tumor / signaling in merlin-deficient human schwannomas / /

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surgical treatment / surgery / radiation / cochlear implant / drug therapies / /

MusicGroup

The Network / /

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Acosta MT / /

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National Institute of Health / Massachusetts General Hospital / Congress / Department of Defense / /

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Jelly Belly (Jeb) / Kim Bischoff / Eric Legius / Aurora Kinase / Neck Surg / Evans / /

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Bone Miner / Executive Director / consumer representative / Bronson RT / Congressman / Cao / Fisher / scientific and medical advisors / Head / /

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Vitamin D / Lovastatin / NF1 / Lapatinib / human schwannomas / /

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Newfoundland / /

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the CI daily / the New England Journal of Medicine / /

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Bailey AM / /

Technology

radiation / speech recognition / MRI / cancer detection / standardized testing protocol / genotype / /

URL

www.nfconsortium.org / /

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