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Nemaline myopathy / Rare diseases / Myopathy / Hypotonia / Muscle / Weakness / Muscular dystrophy / Neuromuscular disease / Amyotrophic lateral sclerosis / Anatomy / Health / Neurological disorders


Building Strength Together Issue 14, Fall 2013 C O NNEC T IN G, IN S PIR IN G & EMP OWER IN G T H OS E A FFEC T ED BY NEM A L INE M YO PAT H Y Old Friends, New Friends Convene at Nemaline Myopathy Forum
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Document Date: 2013-11-11 19:57:32


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City

Buffalo / St. Catharines / Somners / /

Company

Medical Research CMD BioBank / Biobank / The Congenital Muscle Disease Biobank / CMD Biobank / /

Country

Netherlands / Canada / Australia / Sweden / United States / /

Currency

USD / /

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Event

Business Partnership / Product Issues / /

Facility

Building Strength Together Issue / Medical College of Wisconsin / Holiday Inn / Children’s Hospital / Biobank Stores Cell Lines Tara Schmidlen Coriell Institute / Research Institute / The University of Western Australia Dr. Nowak / Royal Children’s Hospital / Children’s Hospital of Buffalo / Coriell Institute / Building Strength Together Fall / /

IndustryTerm

red car / assistive technology / respiratory equipment assistive technology / energy keeping / tissue banking / energy worrying / /

MedicalCondition

nemaline myopathy / rare diseases / CMD / disorder / Scoliosis / hypoventilation / genetic diseases / congenital muscle diseases / neuromuscular disorder / congenital muscle disease / muscle disease / diseases / improved drooling / hypotonia / muscle weakness / muscle diseases / respiratory tract infections / muscle-weakening disorders / cystic fibrosis / Influenza / disease / coughing / /

MedicalTreatment

surgery / antibiotics / counseling / Vaccinations / /

NaturalFeature

Building Strength Together Fall / /

Organization

Royal Children’s Hospital / Coriell Institute for Medical Research / Post-Doctoral Fellow Beggs Lab / AFBS mission / Medical College of Wisconsin / Biobank Stores Cell Lines Tara Schmidlen Coriell Institute / Murdoch Children’s Research Institute / Harvard Medical School / National Institute of Health / Manton Center for Orphan Disease Research / Harvard / ACR Future Fellow Center for Medical Research / Children’s Hospital Boston / University of Western Australia / Children’s Hospital of Buffalo / Cystic Fibrosis Foundation / Beggs Lab / /

Person

Stacy Cossette / Amy Rhodes / Katie Orler / Marc Guillet / Kelly Fuerst / Alice Katz / Lynda Roy / Melissa Niles / Ozge Ceyhan / Jackson / Cliff Katz / Kristen Nowak / Dan Sheehan / Patty Mitchell / Rita Cochrane / Congenital Muscle / Jerry Verdi / Karen Dunbar / Alan Beggs / Kathryn North / Anna Hallgren / Pulmonology Women / Scott Paganelli / Emmett Fuerst / Aimee Gerber / Murdoch Children / Shannon Welty / Tara Schmidlen / /

/

Position

even stronger advocate / advocate / going forward / executive director and president / even stronger advocate for yourself or your loved one / Associate Professor / advocate for myself all the time / Manager / researcher / Service Specialist / Director / Chief / /

Product

Aminoglycoside / gene look / Genes / /

ProvinceOrState

New York / New Mexico / Ontario / Wisconsin / /

Region

Western Australia / /

Technology

stem cells / assistive technology / human genome / drug discovery / respiratory equipment assistive technology / /

URL

www.CMDIR.org / www.buildingstrength.org / www.childrenshospital.org/beggs / /

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