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Genetic genealogy / Muscular Dystrophy Association / Duchenne muscular dystrophy / Limb-girdle muscular dystrophy / 3 / 4-Methylenedioxyamphetamine / Neuromuscular disease / Electromyography / Myotonic dystrophy / Weakness / Muscular dystrophy / Health / Medicine


Services for the Individual, Family and Community Updated April 2013
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Document Date: 2013-04-09 14:30:13

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City

Gainesville / San Francisco / Washington D.C. / Boston / Sacramento / /

Company

California Pacific Medical Center / /

Country

Puerto Rico / United States / /

Event

FDA Phase / /

Facility

Nemours Children’s Hospital / University of Rochester / Washington University / Stanford University / Children’s Medical Center / Kansas University Medical Center / Columbia University / Emory University / Nationwide Children’s Hospital / Methodist Hospital / University of Florida / MDA clinic / Ohio State University / University of California / /

IndustryTerm

select services / transportation / public insurance / online tools / augmentative communication device / online publication features / online magazine site / e-communities / Social services / helpful products / online magazines / print magazine / diagnostic tools / durable medical equipment / communication devices / personal assistance services / prescribed respiratory therapy equipment / minor repairs to gently used equipment / e-updates / /

MedicalCondition

neuromuscular disorders / muscular dystrophy / rare diseases / central core disease / flu / neuromuscular diseases / ALS / Diagnostic procedures Neuromuscular diseases / muscle diseases / limb-girdle muscular dystrophy / neuromuscular disease / disorder / Flu inoculations Influenza / inflammatory myopathies / specific neuromuscular diseases / illness / few neuromuscular diseases / genetic disease / disease / earliest disease / later disease / Each neuromuscular disease / individual’s neuromuscular disease / Charcot-Marie-Tooth disease / painful muscle contractures / muscle disease / diseases / Free flu / each disease / disorders / /

MedicalTreatment

experimental therapies / counseling / Physical therapy / Occupational therapy / Speech therapy / Respiratory therapy / /

Organization

Washington University in St. Louis / Muscular Dystrophy Association / Methodist Hospital in Houston / University of Rochester / Medical Center in Dallas / MDA’s National Task Force on Public Awareness / Medicare / Columbia University in New York / Task Force / Nemours Children’s Hospital in Orlando / University of California / Davis / MDA’s Transitions Center / Stanford University / American Medical Association / Emory University in Atlanta / Children’s Medical Center in Dallas / Nationwide Children’s Hospital in Columbus / University of Florida / Ohio State University in Columbus / Kansas University Medical Center in Kansas City / /

Person

Vance Taylor / Virginia Parent / Phil Foster Parents / Robin Pennell / Angela Wrigglesworth / Jeff Vittek / Sean Masters / Bryson / Bill Stehling / /

/

Position

health care service coordinator / speech therapist / physician / speech-language pathologist / Ambassador / Advocate / clinic physician / nurse / Massachusetts General / /

Product

Prescription Drug / /

ProvinceOrState

Texas / Ohio / MDA District / Florida / California / /

PublishedMedium

the MDA/ALS Newsmagazine / /

SportsLeague

Stanford University / /

URL

quest.mda.org / alsn.mda.org / mda.org / /

SocialTag